This chat site was so useful as you say ,now it's frustrating to write and it just seems to disappear ,as it has now ,,
I know how you feel Louise ,last week I was tryi... - MPN Voice
I know how you feel Louise ,last week I was trying to tell everyone about our chat day ,it disappeared so many times is that an improvement
Written by
Twinkly
To view profiles and participate in discussions please or .
3 Replies
•
LouisePRVVolunteer
Morning Violet,
How are you on this bank hol Monday?
Trying to decide this morning whether to walk Becky, do the ironing, blitz my utility room or make a start on putting together an enormous pair of curtains for a spare bedroom that I've been meaning to make for ages!
Hey ho.
All well here, hope you're fine too.
xxxx
Bank holiday Monday ,,pouring rain We went to our local village fete and dog show ,sad it was a wash out ,,iv got to go to hospital tomorrow to give my bone marrow.
I hate it , But being on the Majic trial ,taking ruxolitinib I must have this test every 12 months ..I also give extra blood on my clinic visits , it's all worth it I reckon to make this trial drug available to those who need it .....
Not what you're looking for?
You may also like...
Platelets 1200 - No Action to be taken?
side effects. Now in a situation where Platelet count is 1200 and potentially rising. Now only...
What to do about mouth ulcers?
Im now starting to get mouth ulcers, tender palate and gums.
Can anyone give offer some advice on...
50mg prednisone steroid
I’ve just been prescribed a 7 day course of the steroid Prednisone.
I’ve now read that a side effect
Taken off asprin today
asprin. So what do I do now with no asprin and platelets of 1124.
You are told you have ET and...
Myelofibrosis and platelets
Hi my husband has has MF for nearly seven years now, on transfusions 3 units every 2 weeks. His...