I know how you feel Louise ,last week I was trying to tell everyone about our chat day ,it disappeared so many times is that an improvement

[Twinkly]

This chat site was so useful as you say ,now it's frustrating to write and it just seems to disappear ,as it has now ,,

[LouisePRV Volunteer]

Morning Violet,

How are you on this bank hol Monday?

Trying to decide this morning whether to walk Becky, do the ironing, blitz my utility room or make a start on putting together an enormous pair of curtains for a spare bedroom that I've been meaning to make for ages!

Hey ho.

All well here, hope you're fine too.

xxxx

[Twinkly]

Bank holiday Monday ,,pouring rain We went to our local village fete and dog show ,sad it was a wash out ,,iv got to go to hospital tomorrow to give my bone marrow.

I hate it , But being on the Majic trial ,taking ruxolitinib I must have this test every 12 months ..I also give extra blood on my clinic visits , it's all worth it I reckon to make this trial drug available to those who need it .....

[Paul42 in reply to Twinkly]

Hope all goes well. Hopefully one day what you are doing will mean we can all benefit.