The poor partners....

[Chelle_]

Rubbish couple of days...... I feel so completely alone at times, I'm in a relatively new relationship 8 months or so, we were friends before for a long time, I've ended it in my head more times than I care to remember, we have such a great time together but when I feel shit I tend to go quiet and don't talk, I'm not good at talking anyway, I feel like I just take it out on him. I just can't work out how to get out if these slumps.....

[Inca]

You are having a bad time Chelle,no wonder you feel so down,on my bad days I take it out on my husband,we've been together more years than I care to remember and without him I could not manage this ghastly PV,our nearest have to put up with so much.Keep strong,don't blame your self,I hope you feel as better as can be tomorrow.I had to mail you I couldn't sleep after reading your words tonight.Best wishes,Inca

[Hidden]

Hey Chelle

I hope you are feeling better today. I can only send a brief message as I am late for work. I'll message you this evening. I do hope you feel better today. I know you feel you are being hard on him but please remember if he did not want to be with you he would go. He clearly wants to be with you. We all take it out on our partners when we feel low I am sure he understands. It is difficult to talk and explain to people what you are feeling and hard to explain what the condition(s) do to us. Hang on in there and as Inca says don't blame yourself. You are not alone... You will find a way to talk to him and in meantime we are here for you if you need us. Liz xx

[linds]

Remember, I don't think we have an awful lot of control over how our really bad days go and so it is hard to explain. On your good days (hope there are lots) use that time, but not too much, to explain how you need to be quiet Better that way 'cos then we don't say things we wish we hadn't! I started yesterday with such a will and then ended by afternoon with the lead boots and such tiredness....I try to work through the fatigue and walk briskly but it does not often work. Do you find this? Do hope things go in the happy direction for you. Linds x

[Chelle_]

Thanks everyone. I do feel better today. I am a very upbeat person and try not to let things get to me but sometimes external forces have other adgendas. I will try and chat to him....that's the bit I don't like... Lol I'm not good at opening up. Have a wonderful day everyone and thank you xx

[Tinkerbell13]

Maybe your partner could also go online to this brilliant site and get support direct from 'fellow partners who are also finding it very hard' - I do sympathise greatly, as find myself getting very sharp sometimes and rather horrified by how unappreciative I can sound when all my husband wants is to support and help me. Tough for him and others in the same situation. But always a help to communicate with others similarly affected. Hope you have many many good days to make up for any bad days. Tinkerbell

[maestromaverick]

Hey Chelle PV . Like yourself I have PV and other problems but live on my own so my hard days are lonelier than most . How do I drive myself on when I just want to stay in bed and curl up in a ball . Well my two cats and goldfish rely on me and while I feel pain and misery I know I'm still alive . Sometimes I will be honest I wish I wasn't but then I remember that other people need my help and love and I'm important to them . Its not being selfish to feel low but there are always people feeling lower . If I loved someone like I believe your partner does you , then I would do everything I could to try to help , but with our problems , its so hard to do right from wrong . Last night I felt so I'll and was running a temp and I'm under strict orders to report a fever as I'm on the Ruxolitinib trial but no way did I want to be in hospital cause that's where you realise perhaps there are others in a worse condition . I so sympathise with how you are feeling but you do matter to us all . Chin up and no surrender . We are always here for you . x .