Aimovig

[Mary1959]

I've been fortunate to be given Aimovig to try, does anyone know if you continue with your preventative tablets, i.e amitriptyline and propanolol or come off them altogether? Thanks

[Cat00]

I continued on everything but it probably depends a bit what you are on.

[Mary1959 in reply to Cat00]

Thanks for your reply, I will check with the doctor

[Cat00 in reply to Mary1959]

If you are on the CGRP's just watch out for gastrointestinal issues so don't go crazy on fibre or change your diet while you are getting used to it.

[Mary1959 in reply to Cat00]

Ok thankyou, the nurse says constipation is a side effect, I start the injections in 2weeks, so will see how I tolerate it. Thanks

[Wrexham16]

Hi I'm on Aimovig. My neurologist told me to stop everything else. Don't be put off by the constipation. It was a problem in the first month or so but I've been on it since February and it's not now a problem at all. Hair loss is an issue for me but I have a lot of hair so I'm not yet bothered by it. I've had a 50% improvement which has at least given me back a bit of life. Hope it works for you

[Mary1959 in reply to Wrexham16]

Hi thankyou for your reply, I've also got a lot of hair so hopefully, won't show. I can't wait to start the treatment, as life is so bad, having so many migranes. Hope you continue to have good results.

[Leylabell53]

I think you need to get advice from your doctor. I came off all other drugs but soon went back on some of them. I dropped one of them completely (candesartan I think). However, I stopped HRT which i had been on for years to combat chronic migraines, and found that i was getting quite bad menopause symptoms. So went back on it. I also came off Amitriptyline which i had been taking for years, but my doctor suggested this might be the cause of the daily neck ache i was experiencing. So i went back on it but in much smaller doses, just 20mg as opposed to 50mg a day.

[Mary1959 in reply to Leylabell53]

Thankyou for your reply. I've contacted my headache nurse and she said to carry on with amitriptyline and propanolo, until I see if the aimovig works. I haven't received it yet, the nurse says it will be 2 weeks before it arrives. Hope it works well for you.

[Leylabell53]

really hope Aimovig works for you and reduces the number of migraines you get. If it doesn’t then it’s worth pursuing another CGRP medication which may work better. Best of luck.

[Mary1959 in reply to Leylabell53]

Thankyou x