New daily persistent headache

[Candy2595]

Is there anyone out there with this?? If so is there anything that helps?? Or any trials upcoming?

I’m at a loss, I’m on various other meds for many health quirks, I feel like I either get to live with a lil less pain and a massive continuous headache which peaks migraine or I get to try medications for headache, while the rest of my body cripples with pain. Just feel a lil in over my head at the moment (pun the phrase!!)

[scottlondon]

I was diagnosed with ndph 12 years ago aswell as chronic refractory migraine and chronic trapezius myalgia.

I know some who have gotten better with the medicinal route but it hasn’t worked for me, I had lost hope until I discovered what tension myosotis syndrome was and then the works of people like dr john sarno , Howard shubiner, Steve ozniach, Dan buglio,

Start by joining a page for journal speak with Nicole Sachs or pain free you by Dan buglio and you’ll start a new journey.

[Francesca21 in reply to scottlondon]

Hi Scott how long since you discovered schubiner and 12 years on are u still in pain?

[scottlondon in reply to Francesca21]

So I discovered shubiner about 3 years ago and begun doing the work, from unlearn your pain.

I got better and got a job for the first time since I’d gotten sick, my pain was still there but less.

Now though I am under a lot of stress and it’s back really bad.

But I intend to re start the work and fully commit to it.

[designer111]

Sorry to hear this! You're ot taking too much meds are you? I had this once, a continuous headache for a whole month as I kept taking tablets to kill it off but it was a vicious cycle and the headache kept coming back.

[hopfulandpraying]

Yes, u could be having rebound headaches if u are taking too many meds to often. Try to stay hydrated and eat live foods and try to avoid sugar as much as possible. Good luck and God bless. I also think the changing weather affects us as headache sufferers

[Sophiebun11 in reply to hopfulandpraying]

Exactly. Rebound migraine is why we are limited to 9 Imitrex pills per month. I need 31, but it would make things worse long term.

[Leelee1957]

Rebound headaches are real! This may be what is happening to you. Caused from taking prescribed and over the counter pain meds. I am going through this right now…waking up with headaches. I had weaned off of Topamax and headaches started again, that’s when I started taking meds for pain. I wish you all the best!

[Candy2595]

My issue is - I have fibromyalgia

joint hypermobility syndrome

Chronic fatigue and pain

hip bursitis

Scheuermanns disease of the spine

postural Ortastatic tachycardia syndrome

Along with that I have 2 subluxating/dislocating shoulders, IBS, restless leg, cramps, spasms etc

So I’m on a whole host of meds to deal with the chronic pain I’m in, I feel like it’s a 50/50 on what I can make better

[Sophiebun11]

Hi Candy,

See a neuro Dr. and get on some preventatives as well as an abortive like Imitrex. I take Atenalol, Diamox, Acetazolamide, and Tramadol daily to prevent migraines or lower the pain down to a 4 out of 10. Then when pain is 10 out of 10 I take an Imitrex.

Preventatives are the way to go. There are so many to try. A Neuro will find the right combo for you.

Best wishes.

[purge63 in reply to Sophiebun11]

Hi Sophie in 11 If you're taking Tramadol every day it will be causing your migraines/ headaches to be daily . It is an opiate and people with migraine are advised to avoid them altogether . This is because opiates are the major cause of medication overuse headache . Your neurologist should know this

[Sophiebun11 in reply to purge63]

Hi purge63,

I had daily migraines for 25 years before I started Tramadol. I don't take Tramadol for migraine it's for something else. I also have cancer, kidney disease, and an autoimmune disease and OTC pain meds won't work. I couldn't survive a day without a strong pain med like Tramadol.

I now face the option of going off all migraine meds to help my kidney disease. My kidney Dr. said last week I have to have a daily migraine or go on dialysis those are my only options. I think I'd rather stay on my migraine meds. Anyone who hasn't had a migraine would think that's a simple choice but it's not as you know.

My migraines are 50% better with my current med regime. I can't imagine going back to the days before Imitrex was invented or preventatives were started. That's no life. Dying of kidney failure shouldn't have to be my only other option.

[houston8]

hi Candy if ur taking both acetazolamide& diamox that’s too much because acetazolamide is the same medication as diamox. You may be double dosing.