Chronic constant headache

[Penny51]

Hi. I’m looking for anyone with the same problem as me.

For 6 years I’ve been taking amitryptiline for what was diagnosed as facial neuralgia.

Starting dose was 20mg and I was “instantly cured”. Over the last few years I have tried to reduce the dose but every time I do I end up going higher as the pain becomes worse and the original dose can’t cope. I feel like the medication acts as a “curtain” which blocks the pain.

Currently I take 100mg each night. I recently saw a neurologist and have had a CT scan plus an MRI & MRA All have come back clear.

I know stress makes it worse. Doctors are desperately trying to call it migraine but my symptoms don’t match. Pain only usually in the centre of my forehead. No light issues, no sickness and no visual disturbance.

I am at the end of my tether. I’ve suffered for 8 years in total and am now going to try changing my diet to remove caffeine initially and then other foods too.

Am I the only one????

[Kzwalls]

Hi Penny51

So not quite the same as you as i have chronic migraine but have done the no caffeine etc for over 4 months without success( hope it works for you). I have now started through a functional nutritionalist a plan which eliminates gluten, soy, processed foods, sugar, dairy to see if that makes a difference! I am keeping my fingers crossed as medically nothing is helping at the moment! Hope that you find relief, good luck but your not alone

[HowCome]

Not, not the only one.... i have a relative with an 8-year headache....

Odd that reducing the dose you end up needing to go back, and then ramp up🤕

Have you been referred to a Pain Clinic?

[IgnoranceSound]

Hey. I have the same issue. Did you find the cause? How are you feeling now?