Migraine: Hi , I've been suffering... - National Migraine...

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Migraine

Carnation11 profile image
12 Replies

Hi ,

I've been suffering migraines for 18 years since I gave birth to my daughter .

Wondering why I suddenly started with them ?

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Carnation11 profile image
Carnation11
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12 Replies
MaryF profile image
MaryF

Just a thought, does anybody in your family past or present have a history of autoimmune disease including thyroid, or heart attacks, or strokes at an early age? Or even miscarriages etc? If any of this rings a bell come back to me. MaryF

Carnation11 profile image
Carnation11 in reply toMaryF

No they didn't

MaryF profile image
MaryF in reply toCarnation11

ok probably not what I have then, Hughes Syndrome/APS. Maybe yours is more hormonal related. MaryF

Carnation11 profile image
Carnation11 in reply toMaryF

Yes it is also hormonal related as well as stress .

Perhaps stress cause by lack of support from my previous partner .

I've also heard that if you were stressed as a child this may lead to migraines ?

Hi, not really sure why either. I never suffered migraines until my last child and went back on the pill. Not sure if coincidence but now have chronic migraines daily. Do see your doctor for medicine and lets hope they dont continue to get wodse. You are not alone.

Carnation11 profile image
Carnation11 in reply to

Yes I do and thankyou

in reply toCarnation11

Hi so my migraines actually changed form from a 3 day attack to everyday. I was diagnosed with vestibular migraine with vertigo.

Getting a peoper diagnosis is important it took me years to find the right neurologist and accepting his diagnosis.

At the I am in my 4th treatment of botox and was very sceptical it was going to help but at the moment I am having a fairly good run without these headaches.

Make sure you keep going to the doctor and one you trust.

My life for the last 5 years has been terrible as my trigger is a severe sensitivity to any movementwhich makes life tough.

I do feel for you and keep going as tough as it is.

If you are not happy with your meds then go back to your doctor you might go thru a few meds before you find the right one. Cheers

Carnation11 profile image
Carnation11 in reply to

Hi

Thankyou for the information .

I take sumatriptan, normally the migraine goes , first sign is a pain on my left eye . Although , sometimes it can take up to 3 tabs and others to try and beat it but taking a break recently waiting about 6 hours after my last medication that hasn't worked , I take iprofen or aspirin and it totally went away .

I do worry about work , they have said that they could turn round and say your not fit to work !

Carnation11 profile image
Carnation11 in reply to

I really do feel for you , the Botox sounds good if you can afford it or if you've gone through the doctors .

I have gone thru at least 6 meds to get to this.

If you feel your current meds arent working get back to the doctir he might try another med or increase current meds.

I am in australia and started on 22 week botox treatment where our medicare paid for the botox not the consultation.

Now as it has taken so long to start working I am on every 8 weeks and medicare does not pay for it.

So hard emotionally sometimes to keep going.

There is a Migraine World summit happening online is very informative.

Hope you take your meds as soon as you feel the migraine and yes must be very hard working with them as well.

One always feel you have been hit by a bus when you have an attack.

Carnation11 profile image
Carnation11 in reply to

Thankyou for your advise and information . It's great to be talking to people and reading information from other sufferers , I don't feel so alone now .

Pinkcat21 profile image
Pinkcat21

It could be hormone related as I never suffered from migraines until menopause when I now have auras without headache.

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