Different headache pain..

[mmcc91]

Hi all, hope you're all as well as can be..

I have suffered migraines from age 7/8, tried many preventatives. Aged 16 they were unbearable then diagnosed with migraine auras

Last year aged 24, out of no where got terrible migraine like no other for about 6months was im & out of hospital - status migrainious and Cerviongenic headache. Thing started to settle with topiramate and occipital nerve blocks.

From start of July I've presented a different type of headache; left temple pain stabbing, into the eye. My eye would flicker/twitch badly people notice or just close shut throughout now I want to rip it out.

get stabbing pains in face also lasting 30mins and coming multiple times a day. But this can be eith or eithout headache present.

I can slso have a headache going on in yhe background of it all. Sometimes have a red eye, it's never with the headache but hour or two before.

[MaryF]

Hi, just out of interest, do you have in your family any relatives with autoimmmune diseases including Thyroid? Any close relatives who have had miscarriages, bad reactions to the contraceptive pill or early aged heart attacks or strokes?

MaryF

[nashjag1 in reply to MaryF]

hi mary, our family my father and brother both died young of stroke, I have had a mild one and am on meds for it. it seems its not possible to do anything only suffer, good job I allow a cold beer in the evening,

[MaryF in reply to nashjag1]

There is plenty you can do about it, 1. Do these tests, insist that your GP runs them, and do the tests at the hospital as the samples taken are time sensitive:

Anticardiolipin antibodies (aCL)

Lupus anticoagulant (LA)

Anti-beta2-glycoprotein-1 (anti-B2GP1)

2. Give me a rough location as your GP would need to refer you to a Hughes Syndrome/APS specilalist.

MaryF

[mmcc91]

There is both underactive and overactive thyroid in my family but mine keeps coming back ok.

There has been miscarriages from aunties on both sides of family.

Not sure about autoimmune diseases. Not aware of any stroke or heart attacks at early age.

Forget to add I'm quite nauseous and sometimes get like dizzy/spinning feeling when standing when have this headache.

[MaryF in reply to mmcc91]

due to the miscarriages and thyroid conditions in your family, get tested for Hughes Syndrome/APS - Sticky Blood, it is a condition frequently missed by the medical profession and in particular neurologists, there is to be a DoH drive to improve this. Here are the blood tests:

Anticardiolipin antibodies (aCL)

Lupus anticoagulant (LA)

Anti-beta2-glycoprotein-1 (anti-B2GP1)

Do them at the hospital as the samples taken are time sensitive and not good to left in GP surgery awaiting collection.

There are specialists that your GP can refer you to if these tests come back positive, I administrate a forum on this platform, but of course many of our members are on this useful forum also.

MaryF

[mmcc91 in reply to MaryF]

Mary F; Thank-you for getting back to me, your advice has been great! I am with my gp Monday, am I able to request this test based on these family conditions?

I just remembered I also have to request a test for a genetic test - haemochromotosis as it's been found to run in my father's side of family and dad just found out he is a carrier and I need tested for that.

The hughes syndrome one seems more urgent for me to push for right now hopefully I can get it! Tgank you for your help.

Hope you are well.

[MaryF in reply to mmcc91]

and. hughes-syndrome.org/about-h...

related conditions: hughes-syndrome.org/about-h...

Often suffers, lose the majority of their symptoms either on Aspirin or anticoagulation, headache wise!

MaryF

[magirose]

I had these issues too with migraine related to auto immune disease

You should have your eyes checked. If you have red eye and stabbing pain you should go to eye casualty. Do you have other health problems at the moment?

[mmcc91 in reply to magirose]

Hi magirosr, thank you for replying! Optician has looked at my eyes and say everything is OK, tge red eye isn't constant just comes and goes.

May I ask if your autoimmune is also hughes syndrome or something else?

I suffer from depression, ibs although being trsted focrohns/colitis as stomach was bad over Christmas landed me in hospital and showed bad inflammation, at present constantly tired and anxious last lot of months that can think of top my head.

Hope your well.

[magirose in reply to mmcc91]

hi yes my red eye comes and goes and nothing usually shows up in eye examinations except one occasion years ago when I had uveitis. I have Behcet's syndrome. It is auto immune and auto inflammatory and also had inflammatory bowel disease suggested at one point before being diagnosed. I must look at Hughes syndrome never come across that before. My disease is a form of vasculitis and that type of migraine syndrome is related to vasculitis.

[mmcc91 in reply to magirose]

I do not have hughes syndrome that I'm aware of, Mary F kindly replied to me above, I will speak to gp about all information provided, thesr support grouos seem veery helpful and supportive.

[magirose in reply to mmcc91]

Ok. My misunderstanding. Soubds like something auto immune to me. I was diagnosed with a chronic form of meningoencephalitis related to vasculitis. If you have a migraine complex which doesn't respond to normal treatments there may be an u derlying cause. Neurologist was unable to diagnose me as I don't have a neurological disorder and inflammation causes my pain.

[mmcc91 in reply to magirose]

Sorry for bringing hughes syndrome up and confusing matters, the autoimmune discussions are new to me, but I bring both of them up with my Dr. I'm not scheduled to see neurologist anytime soon was with him last week.

[magirose in reply to mmcc91]

No it's fine. I just didn't read all of the post. Good luck with diagnosis. Hope you get answers x

[SJblue]

Bloodshot eye and stabbing pain are also symptoms of cluster headache, you may want to check out the OUCH UK website, lots of very useful information and a wonderful helpline.

[mmcc91 in reply to SJblue]

Hi sjblue, thanks for your reply, my neurologist has said I dont present enough autonomic features so does not feel it is cluster at moment even though I have spoken about this. I am back with my gp Monday and I will be bringing up all the advive given you have all provided. It is much appreciated.