Update topiramate about 1 month in. - National Migraine...

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Update topiramate about 1 month in.

cupoftea1 profile image
6 Replies

Hi everyone.

I hope most of you have been as well as can be.

Iv been awful the last few weeks iv been on for about 16 days with only a day in between of spotting and have had migraine/headaches for 16 days straight some days have been worse than others.

I have finally come off a couple of days ago! My head is still bad not migraine but bad it's hard to explain.

I think it's the topiramate I feel like there is pressure in my head and behind my eyes and I have sharp pains in my head on and off constantly and my eyes feel dry and achy all the time particularly my left eye.

I also havnt really felt myself I have been panic and anxious and feel like I'm constantly second guessing myself and on edge all the time.

I feel really down and ugly and have been getting spots which iv never had not even through my teens but I don't know if that is due to the meds or my long period this time!

I went to Dr's to tell her about my migraines still and she's upped my dose because I was only on 50mg so now I will go up to 50mg in morning aswell as the 50 at night. She didn't say alot about the rest.

Just said to see how I get on with the higher dose.

Xx

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cupoftea1
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6 Replies
babs1234 profile image
babs1234

I do hope you are better with the stronger dose. Is this a pain killer or is it like a triptan. I find sumatriptan works wonders but you are limited to the amount you take. 2 a week which is useless when you get daily migrains. I really think you should ask for a second opinion about your 16 day period and I wouldn't be surprised if you are anemic that's why you are feeling so low. Good luck.

cupoftea1 profile image
cupoftea1 in reply to babs1234

Hiya babs the topiramate is an anticonvulsant and is being used as a preventative I also have sumatriptan for my migraines.

I have had problems with my periods for a few years and was being seen by a gyne but after a few months of seeing him and tests all that came back was I had a cyst on my ovary that went by itself after 3 months but other than that everything was fine but it's all still the same.

Thanks for your reply

Merry Christmas xx

babs1234 profile image
babs1234 in reply to cupoftea1

Are there any side affects with that drug . I was on amitriptilyne and the side effects were terrible ...merry Christmas to you too. Let's hope we are pain free xxx

cupoftea1 profile image
cupoftea1 in reply to babs1234

Hi babs there are some bad side effects the worst I get is extremely severe constipation at times and the pins and needles I don't think I get much more than that I do get quite agitated and stressy in situation I wouldn't normally but I don't know if that a side effect x

kelcy profile image
kelcy

Hi cupoftea1 are you still taking Topiramate now? How are you getting on with it? I've been on it since last April and found it hard at the beginning too, im now on 100mg am and pm

cupoftea1 profile image
cupoftea1

Hiya Kelcy iv been on it for a few months now I think she started my on it around end of September time!

I'm now on 50mg am and 50mg pm

They hadn't really helped when my Dr had kept me on a lower dose of 50mg just at night but once she upped my dose they seemed to have help I went from christmas eve to 16th Jan without a headache which is completely unheard of for me! But then I came on my period and had a couple of migraines and now this past week (after my period which is weird) has been really bad! X

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