Hi all, I've been diagnosed with Basilar migraine and I'd be really interested to chat to anyone else who suffers from this. I realise its pretty rare and since the symptoms are so debilitating and bizarre it would be great to chat to some other sufferers!
K x
Haven't heard of t his one but will google it
Hi I was diagnosed with migraines in May after experiencing headaches, severe vomiting, black outs, lack of coordination and confusion since having viral meningitis in Feb. It was only in July when a neurologist said it was basilar migraines. I'm still on the same treatment as I was for migraines before including acupuncture and I'm startings to recognise triggers more but it does seem to be something my GP knows little about.
Hi, yes I've been suffering from basilar migraine since I was 11 I'm now 32 they only finally diagnosed me with this type of migraine when I was about 22 when I get them I get slurred speech, loss of Co ordination, blurred vision, vomiting. About two years ago I changed doctors and he referred me to a neurologist who was amazing and put me on yet more medication, I thought I had tried them all and when I take it (I had to stop taking it for a short while as was pregnant with my little girl) I don't have them 😊 the medication is called topiromate alot of docs haven't heard of basilar migraines and apparently this drugs only been about a few years according to my doc.
I've had many of the symptoms of this (currently improved, thankfully) but have only been diagnosed with 'migraine'. Whatever symptom I described I was told it was 'just migraine'.
Hello Kitty
I,m sorry to hear you have Basilar migraine , I was diagnosed with it about 2 years ago .
I spent nearly 4 weeks in hospital previous to that as the doctors thought i,d had a stroke. I,ve been under a neuroligist till recently and all he has done is tried me on various medications which i,ve stopped taking as I didnt like the side effects .
I am on pregrablin at the moment but put weight on with them but they keep the worst symptons away.
I dont think theres much of a cure i,m afraid I hope you get the help you need , I,ll be interested to see how you get on
take care
barbara
Hi all, thanks so much for your replies. I've just been put on topiramate, hopefully it helps treat these attacks.
Do any of you have a medical ID bracelet? I was being investigated for epilepsy and thought I should get one, now I know its basilar migraine not epilepsy, the attacks are still the same (loss of consciousness, confusion, slurred speech etc...) so I've been told a medical ID bracelet would be helpful.
Do you have an ID bracelet? If so, where did you get it and what info did you put on it? This is such a little known condition I feel a bit overwhelmed trying to get myself treated and better equipped to deal with an attack, and also how to describe it to doctors and others, especially during an attack. Thanks all!
I know this is an old post but I've just been diagnosed with various types of migraine, basilar being one of them.
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