It's been a while since I posted on these forums.
I have been to see my specialist several times since my last post, he says that my bilateral Papeladema has all but gone just leaving scaring.
However, my eye sight and pain still deteriorate. He says this is due to the optic nerve being re - exposed to my csf.
I continue to be a nervous wreck of pain and inability to work, which I am hating, even more than the frustration of the no answers.
All he can say is idiopathic no known cause or source. Kinda sad.
Wish there was better pain management than the two very invasive procedures.
hope this helps someone, if you have questions I'm happy to answer