Migranes

[michael4194]

I've been diagnosed with migraines for some time about 10 years and have over 20 a month and getting worse I get them so bad that I can't dress make a cup of coffee some times the pounding in my head is so bad it makes me so depressed and loose all concentration feel sick pass out land lose all the feeling in one side and also happens without the headaches they are so bad that sometimes 2 ramadol and 2 paracetamol 4 times a day does not work

[MaryF]

If you have been checked out for Hemimplegic migraines and it is not that perhaps seek further advice, an appointment with the National Migraine Centre would be a good thing, if you have and feel it is something else get your Dr to run the tests for Hughes Syndrome/APS, just to rule it out.

ps blood tested already on here under a recent post about cluster headaches!

MaryF

[Johnny-One]

A lot of us on the forum suffer similar things to varying degrees ... Just seek medical advice and start the long hard slog to some form of recovery or at least working with the condition. Don't let it get on top of you though; there are thousands of us who suffer a variety of similar conditions ... learn to laugh at yourself when things go wrong. I walk into walls and doors when I get bad. I have even fell down several flights of stairs because I lose my balance when my headaches get really bad, but I just get up, check no-one saw me, laugh (or cry if the pain is bad) and carry on with life.

[Ursinia]

I suffered for 28 years and tried lots of complementary treatments to no avail. I started taking beta blockers 6 months ago and things are so much better. I still get headaches but rarely and I don't dread waking up each morning any more.

[chrissy30]

Hi Michael19194. Have you tried Sumatriptan or similar triptan? I'm under a headache specialist who comes down from London to our medical centre and he's really helpful and he's been injecting me with Botox to see if that helps. Yes it stings a bit but it's worth having a go if your doctor will sanction it. But talk to your doctor first about Triptans. Too many painkillers can cause rebound migraine/headaches so best to chat to your doctor. I've suffered from them for years and as I've got older they seem to be almost constant but I also suffer with fibromyalgia and arthritis and brittle bone disease and Coeliac disease. The brittle bones has damaged my upper spine due to not being diagnosed with Coeliac disease until about 10 years ago - I'm 67 now - and the gastroenterologist reckon I'd had it all my life as I always had 'tummy trouble' which was put down to 'nerves'! So do go to your doctor and discuss it with him/her and if they won't help find a doctor that will. I know how miserable Migraine can be but Sumatriptan does help to a degree but as I'm not a doctor, although having worked in the medical profession as a counselor before I retired, so best to get an experts take on the matter. Sometimes one has to badger the medics to get some help. Also check out depression too as that can make headaches worse and having migraine can cause one to get low in spirits. I do hope you get some help but sometimes we have to learn to live with these horrible things. I've had it for years but refuse to give in to it but do rest up when I need to. Lots of love and hugs to you.

[kairy45]

Hi, this is my first reply to a post but like Chrissy30, I also suffer from fibromyalgia and migraines. Fibro was diagnosed in 2006 and migraines 2009. I also suffer from osteoarthritis, spinal stenosis, chronic fatigue and various other illnesses.

I find that my spinal stenosis, which is in my neck, can cause migraines more especially if im reading or sitting with my head down without decent back/ shoulder support.

I also take Sumatriptan, only since late 2011 though, before that I was taking steroids for it but my migraines didn't ease at all and my body just ballooned.

Ive lost the weight I gained and find Sumatriptan and 2 paracetamol and a dark room work. Ive found out that they work better the earlier you know a migraine is starting.

I hope this helps. Good luck.

[michael4194 in reply to kairy45]

i whent to my gp yesterday and hes refering me to to specialist ive tried triptans and they made my asthma worse and ive had heart attack and a stroke so only certain medecation i can take so hope sees me soon