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Hi everyone

Just recovering from my second migraine this week and feeling a bit sorry for myself! I have had migraine with aura since I was about 16 (I am now 59). Sometimes I get the pain sometimes just the aura. Mine starts with a blind spot in the centre then changes to a jagged arc that gradually moves to the edge of my vision and disappears. I always feel totally washed out after an attack. Its hard to convince non sufferers how bad you feel. They think "it's only a headache"!!!! So glad I found this site, feeling better already.

8 Replies

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  • Some times just having a darned good moan really helps-- I am sorry you feel like horrible after a migraine, a little understanding goes a long way.

    You will find loads of coping strategies here, hopefully you will find some which help.

  • Thank you so much for your kind support. Feeling much better today, sorry for the moaning.

    I realise that I am a lot luckier than lots of the folk on here. I only get occasional attacks. I will continue to try and support others as I have been supported.

  • Dear What a statement (Darned Good Moan) -I am suffering from cluster headache after an automobile accident 1985 till date. I am a professor at a university and live in a bachelor dorm away from my family. when the attack comes, I go to outer field and shout/cry like hell as I do not want my fellow professors to to see me crying like hell in this pain. What to say about the intensity of pain of CLUSTER HEADACHE. %^$$%^&*((^(^)%&$%^--(do not have enough words to explain the intensity of pain).

    Like some women who have given birth to a baby and have suffered the cluster headache say that there is no comparison of child birth to CH, as there is more pain in CH than giving birth to a baby.

    Dr. BT Horton in his paper in 1923 suggested as this may be the limit of pain that a human body can handle and hence he named it SUICIDE HEADACHE as some 15+ suicides are reported every year due to Cluster Headache.

    Good part is that-- Now I know how much pain a girl suffers while giving birth to a baby in villages without any anesthetic what so ever Ha ha hah LOL

  • I'm sorry to hear that you have had such a tough week.

    I often get clusters of migraines - though one specialist did suggest that it was probably the same one but just the meds I was taking wearing off ... which actually seemed to be true when I changed to another med and they changed to every other day rather than every day.

    I have a friend who is an artist and although she doesn't get the headaches at all the visual disturbances are totally disruptive to her.

    My worst thing isn't so much headache as the spasms I get in my digestive track - those don't happen everytime but when they do it's a question of just lying in bed with occasional dashes to the loo clutching a bowl.

    Headache can be really debilitating and the fuzzy head - I describe it as 'thinking through treacle'.

  • Hi dear

    I used to such type of migraine since I was 18 years Los and I'm now 48

    My attacks are exactly the same as yours but I can clearly link it to some tpe of food most of the time

    Other triggers rather than food could be lack of sleep , some perfumes , stress , strong lights , sometime even pulling my hair or hair style

    I used to it , trying my best to avoid triggers , and take my medication right after I start seeing white spots

    It is so exhausting , causing fatigue but thank god I'm not getting it daily .

    You are not alone in this :)

    Maitha

  • Hi dear

    I used to such type of migraine since I was 18 years Los and I'm now 48

    My attacks are exactly the same as yours but I can clearly link it to some tpe of food most of the time

    Other triggers rather than food could be lack of sleep , some perfumes , stress , strong lights , sometime even pulling my hair or hair style

    I used to it , trying my best to avoid triggers , and take my medication right after I start seeing white spots

    It is so exhausting , causing fatigue but thank god I'm not getting it daily .

    You are not alone in this :)

    Maitha

  • Hi Maitha

    Thank you so much for your kind reply. It's so good to know there are people out there who go through the same things.

    I have had 2 days without aura or pain so hopefullly are now coming out of this cluster. I still am unsure what causes them. It may be months til I get another, it has been over a year in the past!

    I often get them when I have faced stress. Not when I am facing the stress but when I relax after! It seems a bit cruel that one....

    Anyway, as you say, we are blessed that we don't suffer every day.

    Thanks again for your support.

  • I suffered from migraine with aura since I was 12, Tried everything. There were tests being done re hole in the heart, I sent for papers, I was too old for the tests. Even if I did have, I doubt theye would have done anything. It seems I was born with a hole in the heart. The hole was too close to the arteries, theye had to go through the chest. After I had the surgery, hole repaired, I haven't had a migraine attack since. Surgery done 2006.

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