Constant visual disturbances for 9 weeks

[Bluemoon37]

Hi all,

I've been having chronic migraines since catching COVID in 2022. I had a bad run of 7 migraines over a week, 9 and a half weeks ago. Which led to the room shaking constantly, whether my eyes are open or closed. The room shaking is one of my signs a migraine is coming on for me, and this time, it just never stopped.

I was on Amytriptaline 50mg at the time and taking Sumatriptan to manage the peaks. My GP took me off Amytriptaline and Sumatriptan in case it was a bad side effect and I was seen by Neurology a couple of weeks ago and the eye hospital. They explained that my eye health is fine and everything points to a chronic migraine episode that although rare, could last this long.

My eyesight has been slowly improving over the past 9 weeks to be more like a shimmer. They've put me on Propanalol 20mg for the last week and a half which hasn't sorted it just yet, but it's slowly getting there. I tried 80mg earlier in the year and couldn't tolerate the side effects.

I've been following a migraine friendly diet and avoiding my big triggers. I'm also taking Magnesium, Riboflavin and Co-Enzyme Q10 and managing the peaks now with Naratriptan.

Has anyone experienced anything similar to this or could offer me any advice?