Thank you - Hemicrania : I just wanted to... - Migraine Support

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Thank you - Hemicrania

Katiedoodle
Katiedoodle

I just wanted to say thank you. A few years ago (2014 I think) I came across a post here which mentioned Hemicrania. 5 years later and a couple of trips to see the headache god in London and I have a diagnosis and it’s under control.

I still get migraine too but the constant pain and swollen nose are under control.

5 Replies
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So glad for you. Yes it could well have been my post as I too was diagnosed with HC. How are you controlling it

X

With indometacin 75mg three times a day. I get slight breakthrough now and then but professor Goadsby said there was little benefit in upping it from where I am. What do you use?

Kzwalls
Kzwalls
in reply to Katiedoodle

Hello,

Apologies for replying to your chat. But i have HC and despite a number of treatments (inc Indometacin) my HC is not controlled😩 but your post has given me hope, so huge thank you as its hard not to get down with little hope of getting this under control xx

Katiedoodle
Katiedoodle
in reply to Kzwalls

Hi there are some new treatments being trialled. I hope one works for you. Did the indometacin work at all? There should have been improvement or the HC diagnosis shouldn’t have been given.

Take care

Kate

Kzwalls
Kzwalls
in reply to Katiedoodle

Hi Kate,

I had a partial response but not total. I use it as a rescue drug for up-to 6 days when having a severe spell which helps to calm it down. Tried GON jabs which helped initially but then didn’t so had my 2nd botox last month, so keep 🤞. I am under Walton which i have a great deal of faith in. So glad your getting relief, take care k x

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