I've been advised to make a claim for DLA based on the fact that I am still recovering from Men B and Scepticemia and have a variety of other health problems. I haven't recieved the form yet, but have been advised that it is very long and that I should get as much help as possible to complete it.
Does anyone have any advice about this - where to get help/support in completing etc..
I'm a year on since being taken seriously ill with M (B) and I can honestly say it has been the hardest year ever. I was offered no follow up from the hospital and have now been advised by my GP that this should've happened, but because I was on a Cardiology ward they would not have any specialist knowledge regarding M(B) and after effects. I think this is disgusting. It has taken me over a year to get people to listen to me, and I am now being referred to see a Neurologist.
Anyone out there recovering form M (any type) don't give up - keep telling people you need help and support. I admit it is quite wearing and frustrating, but I eventually have people listening and on my side (including the Meningitis Trust). As someone said to me yesterday - There is light at the end of the tunnel - it's just a very long way to get there. I had the worst week ever last week, so I am trying to remain positive and whilst I can only see a glimmer of light, I hope that with time it will get brighter and brighter (fingers, toes and everything else crossed!!).