I was admitted to hospital last June with Meningococcal Meningitis (Scepatcemia) and am really struggling with recovery. I spent 2 weeks in hospital and have no memory of the first week at all - the second week and first few of being home are still quite fuzzy if I'm honest. I have a very supportive husband and daughter who have both been through so much - but I do feel so guilty for putting them through so much especially as they both thought I would not survive this horrendous illness.
Almost 12 months on and I still get very tired very quickly from doing the most simplest of things, I have ongoing pain in my neck and lower back, short term memory problems, issues with my eyesight (which means that I need to have treatment which is going to reduce my vision). Since having meningitis I also struggle to keep my hands and feet warm which my GP thinks could be related to the sceptecemia. All in all at the moment I feel very lonely and frustrated and feel as if everything is an uphill struggle.
I have been in touch with the Trust who have been amazing, and only yesterday I saw Ffion who suggested that I look into this website - hence my post today. I have also accessed counselling last year via the Trust and this ended in January.
Does anyone else feel like this? I keep getting suprised glances when I tell people that I am still recovering - your home and look fine, so therefore you're well is the assumption people make. Has anyone else experineced this and if so, how did you deal with it? I have a constant battle with what my head tells me and what my body will tolerate/do - I may think ok today I feel fine so I'll go and do the shopping, housework,garden etc. Then my body starts to ache, I get really tired and end up looking and feeling awful. Is this just me?