Not quite sure how to word this.
I had meningitis in 2005. Initially suffered total memory loss, spent 10 weeks in hospital, had to learn to walk/breath etc again. And couldn't and still cannot remember a lot of things. I, for this day cannot remember the affection for the girlfriend I had at the time, nor what we did together, I cannot remember much about university other than that I attended, and a few very vague what I 'think are memories' And I only have memories from pictures I've seen since, not actual visual memories of actions, scents/smells that I could recall. I had a 2 minute heart attack.
It still affects me under moments of stress, I was never given any rehabilitation from the hospital (only care from my parents who found out about the Meningitis Trust (Meningits Now) via a local shopkeeper.
I have lifelong kidney failure (from the age of 5) DWP are claiming the meningitis no longer affects me as I am not seeing a specialist for it.
I stopped driving and being confident in many things after the meningitis. My personality changed. I lost interest in many things I previously loved, and focused on different aspects of life.
I was planning a life of sorts with my partner and that was all lost, and if that doesn't affect a man mentally I'm not sure what does.
Without some sort of formal document I feel they will still ignore the lifelong effects of my trauma.
I'm getting help with my PIP appeal, but I just wanted to share this with you. If anyone has any ideas. I last saw a meningitis specific counsellor some years ago (and I'm getting more counselling therapy at the moment).
When I'm stable, I can get on with life to some degree, despite treatment every other day, but when something like this comes along I can't cope!