is an ABI a hidden disability?: Hello It’s... - Meningitis Now

Meningitis Now

6,857 members2,117 posts

is an ABI a hidden disability?

N3771 profile image
1 Reply

Hello

It’s six years since I had VZV viral meningoencephalitis and as a result an acquired brain injury. I suffer with panic attacks and anxiety as a result and find noise and crowds very difficult to deal with. I would like to take advantage of ‘relaxed sessions’ that are organised at this time of year for neurodivergent individuals so that I can enjoy some Christmas light trails. Thing is I have no proof of a hidden disability and obviously am not registered disabled or in receipt of pip or whatever it is that I need to provide proof on booking. How can I prove that I struggle with this hidden disability? What have other people done to address this issue? Any advice would be greatly appreciated. Thank you.

Written by
N3771 profile image
N3771
To view profiles and participate in discussions please or .
1 Reply
DEBS59 profile image
DEBS59

Hi

I too had meningoencephalitis caused by the VZV virus nearly two and a half years ago.

I use ear loops to help with sensory overload if I have to go out. It helps drown out a lot of noises. When I go for hospital appointments etc I give them a card which helps them understand my situation. I got the card from the Encephalitis Society. It's a credit card size and says on one side,

'I had sustained a brain injury as a result of Encephalitis. Outwardly, I might appear fine, however I may have difficulties with my memory, thinking skills, fatigue, anxiety, seizures and my behavior. A good listening ear will support me greatly-your help is much appreciated'.

The cards are free. Take a look. The Society is very helpful and provide a great deal of support.

Not what you're looking for?

You may also like...

Australia and approved disability support pension after v/m

Does anyone here live in Australia and have been put on disability support pension after suffering...
Ladybug8 profile image

The hidden after affects - emotional

Hello I was diagnosed with Meningitis on holiday. I was initially in ICU for one night and...
Innis profile image

Is This an Improvement or what? Perhaps You Tell Me!!!

Oh! So much emotional as I type these words. It is so fresh in my memory how by this day, two...
vasco profile image

Becoming an introvert after VM?

Hi all and so grateful I found this forum. I have gotten so much out of reading many of your posts...
Love2hike profile image

progress for meningitis sufferers but more progress i feel that is needed

recently it was announced that there has been some evidance that meningitis does cause behaviour...
hannahg profile image

Moderation team

See all
MNVickyP profile image
MNVickyPAdministrator
H_SECOrange profile image
H_SECOrangeAdministrator
JNHCA profile image
JNHCAModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.