Hi all and so grateful I found this forum. I have gotten so much out of reading many of your posts and caring responses. I got diagnosed with VM January 4th, 2018. Went to hosptal with horrible headache that woke me from my sleep. Felt so ill and exhausted. Neck hurt too and felt flu like. After a CT scan which showed nothing they did a LP. They said I had BM. They put me in isolation. But after the culture came back in the morning they said VM and encephalitis from herpes 1, the cold sore virus. Apparently only 1 in 500,000 have that happen. Later they determined only VM as I didn’t present with more symptoms. I was on IV for ten days in the hosptal with Acyclovir. I would ask about recovery and they said not to worry. It’s like the flu.
I felt doctors knew very little about VM and said I would recover fully. I would ask about after effects as still had headaches and fatigue and neck aches but they kept saying all is well, and in a week or so would be back to normal.
Been over 10 weeks (know that is a short time and i am very patient now especially after reading some of you are years out) and thanks to this forum I know my fatigue and headaches that come and go will take quite so time to go away.
My question is this...has VM changed your personality? I used to be very outgoing and even enjoy chatting with strangers and enjoyed seeing friends and my family. I have four kids who are adults and enjoy seeing them but mostly keep to myself. I avoid large groups now and don’t feel much like socializing or talking. Only see one or two friends. Never was like this. Maybe part of it is to conserve energy but truly feel like I have changed. Not feeling depressed just like to be alone much more and quiet. I don’t like to make any social commitments as I don’t know how I will feel. Mostly just that I don’t want to talk, more than being tired.
My friends and even some relatives don’t understand what is going on, why I don’t want to get together much anymore. Neither do I for that matter. I am a different person than I used to be.
And last thing, the month after hospital I came down with the flu and pneumonia. A few weeks later a sinus infection. I used to say that I never got sick. Wow. Not true anymore. Feel like my immune system isn’t as strong as it used to be.
Thanks for any input. Sorry so long.
Going to my first neurologist appointment Monday for a follow up and going to tell doctor to let patients know about this supportive forum. The only place I have truly found answers and support.