After effects of V.M.: Hi, 3 years after V.M... - Meningitis Now

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After effects of V.M.

Mojo67
Mojo67

Hi, 3 years after V.M. for the past 2 years l have experienced weakness and pain in my upper arms, shoulders, neck and ankles? Just had electrical muscle test and awaiting results but was wondering if anyone else had experienced this. Also have problems with headaches and very low B12 but don't know if that is relevant. Thank you.

5 Replies

Yes! I am 2 1/2 years out and still have the same. If I didn't know what it was, I would think I was having strokes every day. I am really sick of it. I try to stay positive and ignore it, but that is impossible some days. I feel better when I am at work.

Hi, I am not a doctor, or in the medical field at all. However, I do know from previous experience that b12 deficiency can cause headache and malaise. Check for other symptoms of b12 deficiency also. What do you mean by problems with headaches?

Mojo67
Mojo67 in reply to Locomotivo

For nearly two and a half years l had headaches every day of varying degrees, some seemed to be made worse not by external noise but by my own voice ! Now however they have settled down to much less frequency and l know my triggers, stress, tiredness and overthinking. Was left with a strange weakness with numbers after v.m. couldn't reverse two numbers and had to teach myself how to cash up again. Thanks for the B12 tip will check it out.

I am only 3 months after VM but it sucks. Daily neck pain, headaches in base of skull and nerve pain and weakness in right arm, sometimes to my hand and right leg. My GP said she can’t say how long this will last and advised not to put too much pressure on myself to feel ‘normal’ again. I am on amitriptyline which does help but makes it so hard to wake in the morning. It is so frustrating. I am sorry to hear you are still suffering so long after VM. Hope it all settles or they can do something to help.

You are very early in your V.M. rollercoaster journey and l wish you a speedy recovery but your Dr. is right don't put any pressure on yourself, listen to your body and find the new normal for yourself. l am proud of how l fought back and taught myself little tricks to help, like turning my body left and right when crossing the road cause if you just turn your head you get very dizzy 🤪 Good luck and l wish you well, if you feel something isn't right stick to your guns till you find the right person to give you an answer or the right medication.

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