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Meningitis Now
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Hair loss after meningitis

I am four months post bacterial meningitis and I am now finding that my hair is falling out at a rapid rate. Is this post illness stress or could it be the results of the high doses of medication I received or just one of those things. I am back at work but struggling with stress, exhaustion, memory loss and lack of concentration I feel that I am literally falling apart. Any suggestions would be very gratefully received.

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I am so sorry that you are struggling. I too know that same feeling. Not sure what is causing your hair loss but suspect it is a combination of everything you are going through. Please try to slow down & take care of yourself. Talking to someone about your situation & feelings does help. I hope you have a support system, if not, please talk to your doctor. Life does improve so slow down, take care of yourself & be patient!

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So sorry that you're having a tough time of it. Your hair falling out is a natural response to the massive shock your body went through with the Meningitis. While you were ill, your body prioritised where the blood and nutrients were to go, the Heart, Kidneys, Liver, Lungs etc. Now things are returning to normal (ish), the neglected parts are starting to recover. Your hair is falling out, thinning, as it was neglected. You'll find that your nails and skin aren't at their best either. This isn't going to last forever and you'll find your hair starts growing properly again soon. It took me about 9 months for things to start to get back on track, so don't worry, your hair will recover. Good luck with your ongoing recovery.

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Hi yes I had the same problem with my hair but it has seemed to have slowed down now I am 7 months post punacoccal menegitas and I am struggle being back in work. I also struggle to drink any alcohol as it gives me a head ache. I just forcast on the positive side I am still here to enjoy my life and my grandchildren. So all I can say is take it easy and take one day at a time you will get better

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Hope I can reassure you a bit re the hair loss. I was very ill with bacterial meningitis in February. I live on my own and was so lucky that a concerned neighbour (who hadn't seen me for two days and couldn't get any answer re phone/doorbell) called my son who came straightaway, called paramedics and I was taken to hospital (I don't remember much about it). I was in hospital for two weeks and, at one point, lost all of my hearing (terrifying!). Very fortunately some of it has returned. I had some hearing loss previously and I now struggle with it a bit more but have more powerful hearing aids and manage quite well. The hospital (including audiology services) was wonderful. Now, the hair loss bit! About four months later my hair started coming out in handfuls - clogging the shower drain. I kept telling myself that the important bit was that I was still here, had otherwise made a pretty good recovery etc etc. But it still felt awful. (I am 67 and my hair had previously been one of the few parts of me that had aged relatively well!) In total I would say I lost well over half my hair. Was told that probably due to shock of severe illness rather than directly linked to the meningitis itself and was assured it was likely to grow back but i wasn't completely convinced. However, it really, really has! It's just as thick as before, still not too grey (same as before). But it is now very curly rather than more or less straight, as before. It's also very shiny and healthy looking. My hairdresser says that some people pay money for curls and I got mine for nothing - well, sort of! Do hope you have similar luck with your own hair - with or without curls! Hope too that you continue to make a good recovery. It takes time and needs a bit of patience. A horrible illness (not that there are any good kinds) but we are lucky to be survivors and to hopefully be able to work our way to a full recovery. All best wishes for your future.

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I felt with the exact same thing. I also had vision issues. Over half of my hair fell out. I'm 6 month into recovery and my hair is finally growing. My hair is still so thin, my vision has corrected and I am alive. So just be patient sweets it will get better. Any day past the hospital and infectious control appts is progress.

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I am 3 months out from having Group B Spinal Meningitis and Sepsis. Spent a week on life support in a coma and 2 in the hospital, then another month at home with home health care and an IV. It is good to read this conversation about hair loss because mine is coming out in masses as well. I had very thick hair, thank goodness, and now I have about half of what I had before. If this keeps up at this pace I'll need to be getting a wig in a month. My doctor said the same thing that Liz-D said below. He said that anyone who survives what we have gone through had a hard blow to our organs and it is natural to lose hair because of that shock. He says it will come back as I get better and stronger. I sure hope that's the case. After a week on life support and 2 months with home health care and a pic line to deal with, I'm really grateful to be alive. So, I try to make jokes with the hair loss so that I'm not embarrassed about it because I really am very fortunate to be here today. I feel like I shouldn't complain about hair loss when God brought me through such a difficult time. Sometimes it's hard though. It's so good to hear from others who are dealing with the same thing.

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Hi, unhappy seeing u in this condition however dont be in tension my wife was in same condition she had hair fall, but that was because of MRI with contrast therefore MRI leads to temporary hair fall and this illness also lead to heir fall in somewhat range, she is now good is taking medecine since last 5th months, she had very bad symptoms at all, keep taking pills you will be great again as you were before.

With respect

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Hi, I’m so sorry about your hair loss.

I know it is frightening!

I am 8 months post VM and 3 weeks ago my hair started falling out.

It is very upsetting to me and scares me a lot.

I am so glad I read this post and see there are others who have gone through this.

I hope my hair starts growing again, I will need a wig if it keeps up at this pace.

When does the horror of this illness end?

Hugs to all of you. Xoxo

Jaime

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