Hi I am looking for hope I suppose , my husband was taken into hospital in January with meningitis.. after 2 weeks we were told he had an infection in the valve of his heart... after an operation which was successful he has now been in ICU for 6 weeks ... he has a tracheotomy & was coming off it slowly, then got sepsis & pneumonia.. he was getting over this & has now got another infection in his neck where line was .
The doctors are saying he has liver , kidney failure & he is not absorbing feed, they say he is very critical, he seems delirious some days but other days he squeezes our hands smiles etc ... we were called in at the weekend as his blood pressure dropped drastically , but after 2 days it’s improved again... it’s like a emotional rollercoaster & mental torture seeing him like this , if anyone has any story’s of how they have overcome being so ill please can you let me know .. I need to have some hope thank you .
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Bell1963
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I haven't got any experience as my sons scenario was totally different but it sounds horrendous what your all going through and I hope he improves quickly. Lots of love your way ❤️
Thank you for your kind words , it sounds like you are going through it yourself.. keep strong ❤️❤️ it’s nice to have support from people experiencing difficulties in their lives.. we can all help each other , I’m so glad I have found this site .
Oh Goodness me...... my heart goes out to you. What terrible, terrible luck. You must ask yourself, what next. I was in ICU with BM for only for a few days so have nothing comparable to help you with. The only thing I can suggest is that when your husband is lucid make sure he knows just how much you love him and are supporting him - I'm sure you are but I am absolutely certain that my health was helped hugely because of all the loving support I received. Please know that there will be SO many people on this brilliant forum who will be rooting for you and hoping that your husband turns a corner. With very best wishes
I was a coma for 2 weeks and another week sat in hospital after they woke me up with from suffering with BM (they only let me out so quick as I kept trying to escape lol)
My family went through hell they was told I wasnt going to make it and if I did I would be badly disabled.
Well I'm glad to say they was very wrong and I've been so so lucky.
What helped me a lot when I woke up was that my family kept a diary for me which they all wrote in on a daily basis. This helped me a lot in making sense on what had happened to me.
It all started with an ear infection which rapidly become the worst headache ever and after about 30 mins that's it I can not remember a thing until waking up in hospital.
The hospital did try to bring me round a few times and on one occasion I can remember my friend reading cards to me that his kids had made me and I still believe that's what made me pull through. I can remember thinking to myself give ya head a shake lad and pull yourself out of this.
Thanks for sharing your story with me , they have told me that he probably won’t be the same so your story has helped , he is a fighter & we are keeping a diary so I’m glad that that helped you , we are all rallying around so he had a good family around him so by the sound of people’s story’s this really helps ... thanks again Gary .
Hello you, I am Gary's mum, my heart goes out to you in such difficult times. We are just starting to relax, Gary is a stubborn,strong young man, who I am proud to call my son, an yes he was a nightmare,really did try an crawl out of the hospital,can't begin to relate all the trouble he caused us,used to laugh with the doctors, told you to leave him sleeping,yes we have come out the other side after many sleepless nights, but thanks to family an friends, who we could not have managed without,keep talking,keep going, always here for you at your low times. If you feel like talking to some one please contact me, I will send you phone number, remember you are not alone. Xx
Hi lynne yes it’s definitely difficult , the doctors have told me that he probably won’t make it & he has a DNR on him now ... but he is fighting so hard & I am not giving up on him he is a very stubborn man who won’t give up easily thank you so much for your kind words it helps so much knowing we are not alone.
So sorry to hear that love,But as you say while he is fighting there is hope, always here to talk love, or will send you phone number if you need, love an hugs. Xx
im Gary sister as my mum said we had are highs and lows. the day i took gary to the hospital was one of the hardest days of my life as the infection took hold of him he was hallucinating and the dr was chatting away not knowing 100% what to do and all i could see was my brother in distress and only person who could get near him was me. Gary is a very big lad (muscle) i had to keep him as calm as possible while nurse giving him injection to help him. i promised him i wouldnt leave him so even when had to put him into the coma i stayed he had a great team of dr.
The diary was good thing it has help gary, i also wrote my own diary with our little jokes. if people were talking and i know what he would say id write it in. like both Gary and mum have said he is stubborn he will fight he is a big pain in the backside.
The advice i would give is stay strong remember your not alone, ask for help and support. we played gary music and had chats with him. am sure your doing all that. As my mum said we are all here if any of us can help please let us know x
Hi...iam a survivor and proof as ones will to live can be enough..honestly hun...i really don't have answers I fight everyday battles ..i wish your husband luck and best wishes for you both..the battle is long and very hard.
In sept , I had viral meningitis, the less dangerous. I had leptospirosis, and also pneumonia. I was no where as I’ll as your husband, but I will say after 4-5 months I’m up and about doing things ,yay. It is still exhausting, as I also have fibro, and overdoing is not my friend ever! Being a workaholic it is difficult for me to pace, or leave a project unfinished. I intend healing and perfect Heath your way. I know it was hard on my husband caring for me and pulling the weight of our home and farm, so make sure u take care of yourself and respite with help from anyone willing. Please accept help from anyone who offers. It is a huge help! Hang in there. It will get better very slowly. Sorry to say.
Thank you everyone for your kind messages... Tony passed away on Sunday ... it was his wish to withdraw all treatment as he said he couldn’t go on in constant pain & would never been the same person again xxxx
I had VM last summer, went blind for a few weeks, and as horrible and scary as that was, it wasn't the worst part of my summer. Long story.
Anyway, I know Gary really appreciated you being with him. I know I've had to lean in on my husband. I wouldn't have made it without him trying to keep me cheered up, and being patient.
I was using a nasal inhaler for allergies when I became infected. Do you know if Gary used one?
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4 weeks in so far
3 yr old post meningitis
All symptoms point to Meningitis but tests say otherwise 
Whats the future for my boy?
