Finding pain killers that work.: Hi..I had... - Meningitis Now

Meningitis Now

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Finding pain killers that work.

663427 profile image
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Hi..I had meningicoccal septicaemia back in 1996 when I was 44. I was lucky as my Dr injected penicillin before being whisked away in the ambulance! I was pretty poorly for several months.

However over the years I have acquired arthritis, had one knee replaced and waiting for another and ankle fusions. My problem is with pain.

My GP is baffled as no painkillers have any effect . The latest being Morphine which has no effect whatsoever . I tried battlefield accupuncture last week, again no effect.

Whilst speaking to her discussing my problem she was speak of pain receptors in the brain. I started to wonder whether my brain could have been affected through my meningitis.

Could this be possible and is anyone suffering the same problem. I just seem to be immune to painkillers.

Thanks for any response.

Gill

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Sprout profile image
Sprout

Hi Gill,

Arthritis, dodgy knee (physio today), migraines plus various other things.

I have tried a whole host of different pain killers (shied away from morphine) and at best they take the edge off.

Been looking since 1980 the only thing that 'semi-worked' also kept me in such a state I could not function mentally.

Also tried the acupuncture, acupressure route without success.

My problem is the nerves sending out false signals due to over stimulation (that's medical terminology for a motorcycle accident, whiplash plus a few other things).

The only thing I get relief with is codeine and that is because it puts me to sleep.

I have recently come across 'freeze gel' which helps briefly with hand and foot pain, but you are talking less than 5 minutes per application.

Sorry I don't have any better news to give you.

Remember this is just MY experience.

sdjohnson231 profile image
sdjohnson231

Have you ever spoken to a neurologist about this? Mine has explained to me that my headaches are a direct result of the nerves in my brain being damaged during the meningitis bout. I feel like my head is swollen during these headache episodes. He tells me it's the nerve endings triggering that feeling in my body. So, the theory could definitely hold true for pain receptors as well.

sonnerkay profile image
sonnerkay

Hi, I agree the replys so far make a lot of sense. I use Low Dose Naltrexone HCL, 4 mg capsule a day. Started with .5 mg . It has been the most effective managing MS pain from overstimulated nerves, and VM damage in 2015. INcreased Endorphin receptors and great energy levels. I used the LDN to slowly get off all pain pills that were no longer working but stopping on my own seemed impossiable. A basic day before LDN was pain levels 8 & 9 & a lot of tears. I am gaining muscle tone & dancing again.

If u have surgeries? LDN Will block medications, so u may have to wait, until u are stable. LDN Is made from compounding RX. I used a naturalpath for the RX. It costs $32.00 a month for RX . Good luck I hope u can find something to help.

Sonnerkay

Melski profile image
Melski

Hi good morning,

I had viral meningitis 3 years ago, I had excruciating pain across my back, my consultant put me on gabipentin and amitriptaline, the two work on the nerve receptors blocking the pain message to the brain. If you haven't tried I encourage you to do so, I still have pain but nothing as bad as it was. The fact that normal pain killers don't work makes me think that it is nerve pain so please try.

Regards

Melski

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