My son is two days out of the hospital, after being diagnosed with VM. I am working with him to try out a gradual return to "normal activities" except that both he and I are very aware that he is not ready for anything normal just yet. He is very comfortable when lying down, but he is 12, typically active, very athletic, and his summer vacation just began. I am encouraging patience, but he is 12...patience is not necessarily one of his greatest virtues. I am wondering if anyone out there has resources specific to young adolescents. Before VM his schedule was school, two hours of hanging and playing sports with friends, soccer 3 times a week and at least 1-2 soccer games a weekend. Are there other parents of VM children out there? What have you found? What did you do?