Nb with ecoli meningitis

My baby girl at 10 days old got ecoli meningitis. We spent 2 months in London sick kids. We go every 2 months back to London for mri . She's 3.5 moths old now . Are later results of her mri Oct 6 said 40% chance in her first year it will come back also stunts but in her brain . We go back in Dec for another mri . Iam asking if anyone has gone threw this ??

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  • Yes my son had ecoli meningitis on two separate occasions . he was only 3 weeks of age when he first got it and again at 10 weeks. He has been left with hemiplegia epilepsy autism and mild learning due to the meningitis causing him to have a huge bleed or blockage in his brain. to meet him you wouldn't know he has these disabilities as he masks them well. Sadly we have had a life time of hospitals and MRI are just now like minor procedures.

  • Thank you for taking ur time to write me. Sorry to hear this about ur son. May I ask if u know how he got ecoli meningitis?

  • Hi my son also got ecoli meningitis, at 13 days old. When I was 37 weeks pregnant my Dr coukd see on my ultrasound that his left kidney was enlarged and was to do an ultrasound in my son at birth. He did not. We asked the doctor at the hospital to do it b4 we were discharged and he said to wait until we saw our pediatrician and ask him about it. We did. Before we could receive the scheduled ultrasound d my 13 day old started hyperventilating. We to him to emerge and by the time we got there he had a 104 degree fever. 2 days later we found d out that it was ecoli meningitis and we spent the following 2 months in the hospital. My son is fine now tha k goodness but he got it because his posterior urethral valve was blocked. His urine was only partially draining, the rest was going back up into his kidneys - "reflux". This caused the ecoli which ended up in his urine, blood and spinal fluid. It spread up his spine and into his brain. Hence the meningitis.

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