I got sick on St. Patrick's Day, March 17th, 2016. I had a headache during the day (and I hardly get headaches). At night my neck felt stiff and I tried to go to sleep. I awoke with a severe heart palpitation that took my breath away for a second. I went online and searched my symptoms since it alarmed me. Webmd had a pop up that said if you have a headache and are experiencing neck stiffness go to the E.R. immediately. I debated back and forth on whether or not to go to the E.R. Finally at about 3 or 4 in the morning I woke my husband up and told him I was going to drive myself to the Hospital. He insisted on driving me. When we got there my temperature was normal, I could touch my chin to my chest and it wasn't (the worst headache of my life). They did a ct scan which came back normal. The E.R. doc gave me some pain meds for the headache and sent me home. When we got home we were obviously tired, I tried to sleep but my neck was really really hurting. Still worried I called my family doctor when their office opened. I asked if meningitis can be missed by a ct scan. The receptionist said she doubted it but would ask my doctor. She called back and said the doctor said if I had meningitis they would have found it at the E.R. The next three days I felt back to normal. I saw my family doc and she thought it was just anxiety and I said yeah, maybe that was all it was. But the following days I started to feel sicker and sicker. I started to get headaches off and on, I was tired, my eyes were sensitive to light, I couldn't concentrate on simple things and my short term memory was messed up. The headaches turned into all day headaches every day. Worse than when I went to the E.R. Some body aches and pains and loss of appetite some days. After about a week and a half of this I went back to my family doctor. It was horrible. She kept asking me what I was afraid of. ( I guess she was asking what I thought I had) I said meningitis, not bacterial meningitis but some other form. She said "Well no one has meningitis for a month." We talked a bit more about symptoms and she asked me to move my neck all around, which I did. She said "Your neck isn't stiff." (I didn't say it was stiff anymore!) She asked me again what I was afraid of, exasperated I said, "Meningitis!" She asked me why I thought that. I said because every time I put my symptoms in online that is what comes up. I was exhausted and in pain during this office visit. My husband was with me luckily. I brought a piece of paper with my symptoms listed on it, because my memory had gone bad. She looked at it and says "It says here your eyes are sensitive to light." "That sounds like a migraine." For the third time she asked me what I was afraid of. I started to cry, because I could see she wasn't going to help me. I told her I didn't know what she wanted me to say, I didn't know what the right answer was to her question. She refused to refer me to a neurologist and instead did blood work to see if I had Lyme. I had seen this doctor for almost 15 years. The was the last time I saw her because I decided to change doctors. Since then it has been a nightmare. My fatigue got so bad I was bedridden, I couldn't do anything! Taking a bath or shower was too much for me even. Climbing stairs was exhausting. I got too tired to look up symptoms of what I might have. I didn't make any other doctor appointments because I was too tired to leave the house. My horrible fatigue finally let up on May 1st. So I was sick for a month and a half. I still had some fatigue, cognitive issues, photophobia, personality changes and jaw pain. Which might be TMJ brought on by stress? I got a new doctor, I got a dental guard for my TMJ, I saw a neurologist and I don't know how many times I got blood tests done. The more I talk to receptionists, nurses and doctors the more stressed and horrible I feel because most of them don't believe me. I'm exhausted from all of this. My life has done a 180. I had an MRI done a couple weeks ago which showed nothing. My new doctor said my one blood test showed signs of inflammation. The other doctor at the same practice said that if I had something it would have presented itself by now. What? I didn't understand what he meant. I have symptoms EVERY day. I guess he is saying it would have shown up in the lab tests I have had. I wish back when this had started I had gotten a lumbar procedure because I don't think they can detect it now. It's almost July now. The worst thing about this whole thing is not getting validation from the many doctors I have seen. Does any one know if there is a test I can take that will prove I had/have viral meningitis and mild brain damage? I am in the U.S.A. but I am thankful for this site. I also had my first ever panic attack 2 and half weeks ago. Which was a another nightmare experience of going to the hospital. I thought I was having a heart attack, they kept me over night to monitor my heart. The next morning 3 doctors in quick succession came into my room questioning me about why I was there. Like I was wasting their time because all the tests were normal regarding my heart. If I had known I was having a panic attack I wouldn't have come, I didn't know what a panic attack felt like, I thought I was dying! I was so upset and crying over the way I was treated yet again by doctors. I'm emotionally and physically exhausted from all of this. Sorry this is so long.
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