Solenoid/optic meningioma experience?

[Naturemom11]

Hi. My husband just got diagnosed with meningioma behind his eye and solenoid area. We don't have surgical options. Does anyone have experience living with this type? What treatment did you get?

[Pasta66]

Hi I have been diagnosed with an optic nerve sheath meningioma in my left eye, I am now totally blind in it but had a crainiotomy to remove most of the tumour to save the sight in my right eye in July 2022. A contrast dye MRI discovered this, as I was noticing I was losing the sight in my left eye. If I didn't have the surgery I would have been blind in both eyes.

[Naturemom11 in reply to Pasta66]

Thanks for sharing.

[Pasta66 in reply to Naturemom11]

Thank you for replying

[Walk24]

Dear Naturemom11 ,

I am hoping I can help.

I am new to the forum following recent surgery to remove a meniginoma that was located in my tubercular sellae which was placing pressure on my otic nerves . My Vision problems were picked up by the opticians who referred me to my local hospital where I was then referred to the Multi Discipline Team in Bristol . My right eye was affected more than my left eye, and my vision in my right eye was really blurred and I had colour loss due to the pressure.

I did not have a Craniotomy to remove my tumour , the team at Bristol operated via Endonasal ( through my nose) resection . Science at its best. I will be seeing my surgeon in a few weeks . The pressure on my optic nerve has been released and my eye sight even at this early stage is fantastic.

If you have any questions please let me know.