New Diagnosis

[AnnFerg]

Hello

Just been diagnosed with a 4.2 cm meningioma occipital lobe. Been dizziness tired and hangover type headaches

Diagnosed 23/4 and have a neuro meeting 30/6 LondonNeuro with Mr Kitchen

Feel like it is such a long wait and anyone else feel the same - what was your journey x thanks in advance x

[KaspianSky]

Hi AnnFerg,

I was diagnosed with a similar sized meningioma on my frontal lobe back in 2017 and had a craniotomy a few months after diagnosis. The waiting is the worst part so I always find it reassuring to actually speak to the consultant as you get a chance to ask questions. I am also under Mr Kitchen and he is so patient and explains things really well. I am happy to answer any more questions you might have.

[Lytham]

I went away for a few days as a distraction, could you do that? I also drank lots of wine but that's probably not recommended ! Take care x

[BrainBrain]

Yes, the waiting is the hardest thing about being diagnosed with an m. It does mean that there isn't an urgent need to do anything, which can be viewed as a good thing - you're not on death's door - but it's difficult to see it that way when you just want answers. I think as time goes on you find ways of coping with the long term nature of it. For example, I've had an op, and I know I'll need another at some point, but I also now understand that they grow so slowly there is time to monitor and consider all options, and that's important because there are serious pros and cons to whatever you choose to do. Good luck with your appointment. Make sure you take a list of all your questions with you.

[dancinglover]

could I ask how you are getting on with Mr Kitchen as his name was mentioned elsewhere?