Son at school: Hi All my son got diagnosed with... - Mencap

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Son at school

Bentfingers6680 profile image
6 Replies

Hi All my son got diagnosed with Digeorge syndrome and he his in year 7 at an Acadamy and they have been sent a letter home saying to all children despite their disability’s that if they do not do their homework they will get detention and stay behind at school until they have done it. Now my Son struggles with learning at school and he always going to be immature because of his condition. How is this right for disadvantaged children, is their a bit of neglect for the disadvantaged children in this school, how do I report this because I feel it is not right or am I being silly. I myself have grown up with disadvantages due to me not understanding things properly and born with Index deformed fingers. So I understand my Son when he comes home from school and lets it all out on me and his Stepmum, the pressure is too much for him and us. Any help and advice would be greatly appreciated. We have asked school to see if we can send him to a special school but they just say he his fine but I believe they just are not understanding my Sons needs.

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Bentfingers6680 profile image
Bentfingers6680
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6 Replies
parasiticworm profile image
parasiticworm

sending to special school does help proof your son has needs for future with benefits claims. Mainstream school downplay needs. I wish I was properly diagnosed as intellectually disabled. When I was a child I I wasn’t. I know I have found it hard to claim disability benefits for my intellectual disability. I have an IQ of 83 so intellectual disabilities don’t want anything to do with me now.

BenjiB profile image
BenjiB

if your son has additional needs an EHCP may be needed. Have a look at IPSEA. There is lots of information on there with help to show you how to apply.

Bentfingers6680 profile image
Bentfingers6680 in reply toBenjiB

My Son has been on a EHCP for 4 years

BenjiB profile image
BenjiB in reply toBentfingers6680

then regular rules don’t apply. If they aren’t following the EHCP or you want something included in it you can call an emergency review yourself to discuss this. You could also make an appointment to see the school Senco and discuss your concerns with them.

Galwaybay2 profile image
Galwaybay2

The first thing is to speak to his teacher, head of year and maybe the school head who will need to find ways to support your son and he definitely needs people to speak up on his behalf. Generally schools want to understand and help but first need to be made aware. He is new in Year 7 and they need to be helped to understand his needs before things become more difficult for him.

Annabellelily profile image
AnnabellelilyCommunity friend

Hi there, I’m so sorry to hear about the challenges your son is facing in school, I hope you’re all keeping well despite that, as stuff like this can be very draining for the whole family.

I would recommend talking to the school and being firm with your concerns, as it will only get harder as he gets older. If needed, organisations like Mencap can offer additional support and guidance also. Remember, you're not being silly for advocating for your son's well-being. You know what’s best for your son better than the school does, and while the school is likely trying their best to understand, in a school with lots of students sometimes issues can slip through the cracks. Wishing you the best of luck in resolving this :)

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