20 yr old has/had: probable ASD diagnosis back in... - Mencap

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20 yr old has/had

Ponypower02 profile image
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probable ASD diagnosis back in 2011.apparently was formalised , no idea only just been given a piece of paper ,was from primary school referral ,2012. I’m not c.c in it.Two wks ago after asking new Gp, needed formalising . This shows his address is wrong, GP wrong practice,EHCP states, global learning difficulties since 2016 yet no ones assessed him, landed with LD team after not wanting to live thoughts so LD nurse thought , it was acceptable to. do as they pleased, one particular person thought they was takin him for bloods despite work being done to support him, only saw him once ,even put wrong name for me on patient passport. Mess to avoid.

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Ponypower02
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Sarah_Mencap profile image
Sarah_Mencap

Hello Ponypower02

Thank you for posting. I am sorry to hear about what has been happening. It sounds very frustrating.

Is it your son you are posting about?

You mention a lot of different things, and it is hard to reply to all of it on here. Mencap's learning disability helpline may be able to help you talk thorough the worries you have.

You can email them on helpline@mencap.org.uk or fill in this short form - mencap.org.uk/contact/conta...

It would also be worth talking to your GP if you can.

Best wishes

Sarah

Kieran_Mencap profile image
Kieran_Mencap

Hello Thanks for getting in touch. If the query relates to autism diagnosis, it might be an idea to contact the National Autistic Society autism.org.uk/ or Ambitious About Autism ambitiousaboutautism.org.uk/.

For support around global development delay, mencap.org.uk/learning-disa...

You may also want to try

contact.org.uk – they provide family support

If support in school is needed, you could contact:

sossen.org.uk – SEN and children in education

ipsea.org.uk – SEN and children in education

I hope this helps

Kieran

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