Our son has autism and severe learning disabilities and is 18. We thought he was eligible for the covid vaccine in Category 6 and were led to believe that our GP had to let the vaccination service know that he is in group 6. However, our GP says he does not feel our son qualifies for Group 6 but we are seeing other young people with less severe learning disabilities being offered their vaccinations this week. Very confusing and upsetting. We have signed the petition but got a standard, non-commital response from our M.P. We don't know what to do next?
Covid vaccination - category 6?: Our son has autism... - Mencap
we are in the same situation ...after my daughter received an appointment it was cancelled and GP now refuses to add her to list.....people with sld don't vote so they don't count but murderers in prison do. Sorry but I am very frustrated about this
I requested my son who has an SLD a postal vote which he receives, albeit he needs some “help” with his cross, he is entitled to vote. You have to register them on electoral register at gov.uk. Everyone who registers is allowed to vote.
Sorry to hear this Booba
Please do contact our Learning Disability Helpline on freephone 0808 808 1111 so that Lyndsey can get you put onto our priority waiting list to speak with one of our Information & Advice Officers who could then look further into this for you.
does he have an official diagnosis of severe LD ? if so I would go back to g.p. point out he does fit criteria and if refused I would ask for a second opinion, and if refused still ask g.p. who does one make an official complaint to. I'm sorry - it's so upsetting to have it confirmed gain and again that people don't care x Good luck
Please do contact our Learning Disability Helpline on freephone 0808 808 1111 so that Lyndsey (our expert this week) can get you put onto our priority waiting list to speak with one of our Information & Advice Officers who could then look further into this for you.
We are still campaigning on this and keeping on the pressure on for a change.
Many thanks Sarah...We have since received a further response from our M.P. who has said that he has spoken with Helen Whately (Social Care Minister?) who has confirmed that due to our son's severe learning disabilities, he should be in vaccination priority group 6. Our M.P. has advised that we go back to our doctor and explain this so we have e-mailed the surgery. We will let you know the outcome, unfortunately, I am not optimistic 🙁
People with learning disabilities fall into priority group six with chronic neurological disease as their underlying health condition, but this only includes individuals with cerebral palsy, severe or profound learning disabilities, or Down’s Syndrome.
The JVCI recommendations state that many younger adults in residential care settings will be eligible for vaccination in group six because they fall into one of the clinical risk groups such as learning disabilities.
Unfortunately in group 6 unless they are aged 16 - 65 and in the at risk group for having underlying health conditions which are as follows :-
The main risk groups identified by the Committee are as follows:
Chronic respiratory disease, including chronic obstructive
pulmonary disease (COPD), cystic fibrosis and severe asthma
Chronic heart disease (and vascular disease)
Chronic kidney disease
Chronic liver disease
Chronic neurological disease including epilepsy
Severe and profound learning disability
Solid organ, bone marrow and stem cell transplant recipients
People with specific cancers
Immunosuppression due to disease or treatment
Asplenia and splenic dysfunction
Severe mental illness.
Other groups at higher risk, including those who are in receipt of a carer’s allowance, or those who are the main carer of an elderly or disabled person whose welfare may be at risk if the carer falls ill, should also be offered vaccination alongside these groups.
You could also take a look at the following organisation for further information, advice or support available:-
autism.org.uk - The National Autistic Society
I'm sorry if this doesn't answer your question as well as you had hoped.
Thank you for signing the petition for getting people with a learning disability further up on the priority group listings.
Not what you're looking for?
You may also like...
JCVI guidelines, those with learning disabilities are classed as part of “group 9” and should be...
season and jab no longer necessary.
With the Covid Vaccine clearly being of far more importance,...
mild - moderate learning disabilities dont appear to be on the list to receive the vaccine at all -...
My son has Down Syndrome and was offered his first vaccine jag on Friday. I spoke to a liaison...
daughter is on their register for learning disabilities for the COVID groupings to be told that...