Hi 🙋♂️ everyone.
I like winding up in a jokey way the manager of my care facility but I picked her name out the bowl for secret Santa,I wanted to get her something special as she fought to get me a new wheel chair this year from my savings- everyone else kept saying I didn’t have the mental capacity to make the choice.
The wheelchair service won’t give me a new one yet as this one is less than a year old,and it’s the usual heavy nhs style not good when I have periphal neuropathy in my arms,hands legs,feet etc so I thought forget them, I will buy it myself.
The manager has fought for months and months to get me this chair ,and it was officially ordered and paid for last Monday it is a quickie neon 2 active manual wheelchair, I’ve tested it out,it is going to be made to my choices and needs.
It will be purple,black with some orange.😁
So I got her something special for secret Santa I actually went over the £10 max allowed as she deserved it.check out the photo iv uploaded,my cat (he has a immune system disability so looks flea bitten) woud not let me rap it, it NEEDS to be done tonight she is on shift with h me tomorrow.🤭😬🐈 Mr Shadow is now curled up on my knee not letting me badly wrap anything.😆
I know people like me-in care are being focused on in the news,this Christmas as so many cannot stay with our families or friends,but the manager here picks up and takes everyone home during the Christmas period, they really struggled with staffing during covid but they fought to keep agency out, as many of us cannot cope with staff who aren’t in our routine.
Most of the staff here are struggling as so many of us will be home here for the first time so they can’t see their families either.
This is helping me cope knowing I’m not the only one whose routine is messed up,I love my mum and she has had to cope all year with cancer and not being able to get out apart from going to hospital for treatment. She’s going through so much, December for me this year is about being glad for what I’ve got, not unhappy for what I can’t do or get.
I’m also so happy for services like venture arts out there who have got people like me back in the studio,I am so greatful for all they have done for me this year,whether it was loaning me an extra iPad so I coud use it for their zoom sessions and my own iPad for proloquo2go or giving me a care package before the studio shut for Christmas/NY.
So I will finish waffling, is there anything you are glad for? About? This Christmas?