FVS/FACS

[emmellecy]

Hi all,

I have Fetal Valproate Syndrome. It is a rare condition caused by my mum taking sodium valproate during her pregnancy. I have high-functioning autism, mild learning difficulties, mild speech problem and mild scoliosis. I'm doing well though, I live independently and I have a part-time job.

Back to FVS or Fetal Anti-Convulsion Syndrome (FACS), I have met other people with the same condition. Some are worst than me in that they have bigger problems with their joints, etc. I have come across people who might have FVS/FACS but haven't been diagnosed. I would like to meet more people with the same condition as well as create awareness of the dangers of taking sodium valproate and other epileptic drugs during pregnancy. A good starting point for anyone looking for help and advice about FVS/FACS would be to check out the OACS website: oacscharity.org/

I hope this information helps anyone who thinks they, or their child might have this condition. My parents had to fight in order to get the right support for me. I'm so lucky to have a great family, even my sister has FVS and my parents have had to fight for her too. I hope I can help people with this post by helping them to connect.

[Sarah_Mencap]

Hello emmellecy.

Thank you for introducing yourself and sharing this information.

It is great to hear that you are getting on well, and that you have the support of your family. Thank goodness your parents were able to fight to get you and your sister the support you need. So many people have to battle to get the right support.

I'd love to hear more about how you are getting on, and more info about FVS/FACS, in the future.

Many thanks

Sarah