Why is it that registered care providers can be allowed to further ruin the lives of people with disablities ? The system for adult social care is in crisis and corrupt.
Why is it that they continue to NOT provide the care listed on the persons care plan with no recourse?
The system works for Care providers and not the individual needs of the most vulnerable in our society.
Parents are shut out - My daughter was traumatised by their behaviour and they still tried to place her in a Hospital setting !! yet it was them triggering the behaviours. I want to name and shame them and stop them being able to hide behind adult social care.
Do you feel like your social worker is on your side ?
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Cakes2695
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Hi. I completely understand and share your concern, frustration and anger. We had a bad experience with my learning disabled daughter's supported living. An experienced senior social worker, two support agencies and an individual member of staff all failed in their duties, despite my best endeavours to ensure her needs were made absolutely clear. I had two formal complaints against the local authority upheld. When we refused to return her to the supported living house I was told that a "best interest" decision had to be made and that I could not make that decision. Our concerns about the inappropriate and unprofessional behaviour of a senior support worker and bullying by another tenant in the house apparently were of less concern than making change that my daughter might find difficult (in their view) even though she had made it abundantly clear that she did not want to return. The experience led me to apply to the Court of Protection to be her deputy for health and welfare, to get legal power to affect such decisions, but I have just heard that the application was dismissed. Apparently, it is preferable to have a court decide rather than appoint a deputy. So, the court system seems to exist to support this failing and corrupt system and the people who work within it, rather than defenceless and vulnerable people who cannot speak or act for themselves. Rant over.
OMG this is a disgraceful , I also had my complaint upheld by adult social care. Don't give up get a solicitor involved and local MP. As a parent all my decisions are based on best interests. Tell them you want everyone previously involved removed - You need a clean slate. Good luck everyones lives are being ruined.
Just curious - with moving abroad - were you able to transfer care budget, support hours etc. or do you provide all care and support? Is your relative who needs support under 18?
We moved to a different county, not abroad. We took my daughter out of her supported living placement and I became, and remain, her full-time carer so she now has nothing by way of a care budget or support hours and currently no respite option (despite requesting this and having the promise of an introduction) so I cannot become ill! She is 28.
Thanks for explaining. I have experienced similar problems. Denied support when took family member out of failing care placement. Cared for back at home - 24/7. Non stop problems ever since. Denied respite and minimal assistance with support provision at home. Tried every avenue for support in line with assessed care needs. Forced back into unsuitable care placement behind my back and set up far worse now.
That is horrific! It never ceases to astonish and anger me how we, as parents and the best advocates for our children, are so dismissively sidelined by so-called professionals whose motives are usually financial, not supportive of the vulnerable people under their care. I do hope things improve for you and your family member.
hi I’m absolutely with you on this! I’m now a full time carer for my brother who is autistic and has Down’s syndrome because of a poor care home and a poor social worker. He lives with me now so I know he’s getting the proper love and care he needs 24 hours a day. It’s absolutely disgusting these companies are abusing our loved ones and some social workers are seemingly turning a blind eye to it all. It makes my blood boil! Please feel free to reach out if you need a friend to vent to or if I can be of any help, best wishes x
Thank you for the reply , as your brother now lives with you full time , do you get any help or assistance ? There are so many of us in the same position nobody is helping.
hi lovely, no, I don’t get any help whatsoever, but in all truth, I don’t want it, I know he’s now well looked after here, I’ve lost all trust in everyone else. X
Ask your county for a Direct Payment, you can use it to employ someone of your choice in your home to help out. I think I'm right in saying that you can also pay yourself for the care you provide in your own home, after all you are on duty all night should the need arise.I'm paid as a carer to my Daughter in her own home and I hand pick the rest of the carers myself. Given up looking for residential care after 2 very bad experiences, this way I can monitor everything.
hi, can I ask about your mention of being paid as your daughters carer. I was under the impression that family couldn’t be paid to care. My daughter is still at home with us, does that make a difference? I’d like find out more if you’d be willing to share.
We have just set up direct payments for my granddaughter as we have been through the same as you. She lives in her own house and her mum is now her PA and I take care of the payments. It does say that in some circumstances you can still do this if they live with you and I know the social care system is in a bad state at the moment so I would give it a try.Good luck x
There are a lot of factors that inform any reasonable answer to your question.
In broad answer - the decision whether to remit (pay) to other family members in Domus for the care they provide is a discretionary one that the local authority can make on application to the same by the responsible party of the Direct Payment.
The theatre of that discretion, in this instant, is where a parent or a sibling is both a carer and is also living with the client (son or daughter or other family member (the Client)).
So for example, a parent who provides informal care in their own home for a learning disabled client (son or daughter or other family member (the Client)) and is the responsible party to remit the Direct Payment budget could seek for a discretionary decision to pay themselves and other parties living in the same ordinary residence.
we have just been through a very traumatic few months with my son suffering at the hands of uncaring and unprofessional providers who show no remorse or accountability. Social care were supportive but ineffective. I am now searching desperately for provision anywhere in England 😩
Yes this what I feel exactlyOur son is getting all worked up and agitated like we never saw him before after the start of care agency with workers who has no knowledge of autism or training
It takes a lot of time to get him back to base.line
We wrote a firm letter to council on friday to get rid of agency
Yes please keep us posted are you using something like - Flexible contract arrangement ? Will he lose his home or do they remove the care team and replace with a new provider ?
I totally agree with you, the anxiety and frustration I have suffered in the last 7 years my son has been in supported living is disgraceful. The bare faced lies, no accountability or responsibility for anything that happens. I made a complaint in July got the social worker involved, my son who's 48 who has severe learning disabilities along with anxiety. He has recently had a mental capacity assessment for finance and failed it. I asked the social worker if I needed to get deputyship she has said it's not necessary as I am appointee. I'm sure appointee only covers benefits. We had a best interests meeting (I might add I wasn't informed it was this till I got there, I believed it was to discuss some of the issues) and the service manager for the company basically lied through her teeth and accepted no responsibility whatsoever. I completely lost it, I'm annoyed with myself but looking back I've just realised the social worker actually didn't come to my defence. We'll see what pans out and like everyone else will carry on and fight tooth and nail till it's sorted, so disturbing to hear everyone else’s stories. Take care
Yes they never support the person or the family it is a battle - Draw your line and give them hell ! you are NOT in the wrong they are terrible and have no accountability. Go to the head of Adult social services cc them in on all emails and raise a HIGH HIGH level complaint. It is totally exhausting but necessary.
You most certainly do need to apply for deputyship for health & welfare and finance for your Son, being just an appointee gives you very little say in best interests. You can also appoint a 2nd and 3rd deputy if you have someone suitable but DO use a solicitor to apply to the court of protection for you, that will give you a better chance of being successful with your application.
Thankyou I actually thought that, what might a solicitor charge to do this do you know? I've seen a few people where the COP have dismissed people deputyship, not sure on what grounds. I believe you can do it online and claim back costs. Grateful for any info you might have. I've been a single parent for pretty much all of my sons life.
It will show you are serious and make them accountable! I'm sure citizen advice would help if you could get help with legal aid ? Worth a look to improve all your lives.
I'm sorry I actually can't remember it's a long time ago. I got it done a bit cheaper by a solicitor friend. He told me at the time that I stood a better chance of success by doing it through a solicitor. Maybe ask Mencap to help with the cost, after all that's what they're there for.The COP provide stamped documents for proof of deputyship.
Also, they require you to fill in Deputy reports every year, it's quite simple to do on line.
I don't know if the situation is still the same but providing your son does not have savings (can't remember exactly the limit they give possibly more than about £3,000?), and is over 18 he should be entitled to legal aid. Also you should ask for a specialist community care solicitor. We used Julie Burton Law in Bangor. julieburtonlaw.co.uk Julie Burton has now retired but the firm is still going and I'm sure they can suggest someone closer to you if Bangor is too far to travel. Carers UK can may also be able to advise you.
Hi. I used a solicitor to submit my application to be appointed health and welfare deputy for my daughter earlier this year - it cost £1,020 and the application was dismissed. I have now instructed another solicitor to appeal, a further £1,200. If you are going to use a solicitor, make sure it is one with good experience - the finance and property deputyship is quite easy to obtain, but the health & welfare one is not granted so often. I thought I had a watertight case (safeguarding issues, two formal complaints upheld against our local authority, etc) but the presiding district judge obviously didn't agree. Sadly, these judges do not live in the same world as us - they dismiss us with a wave of their hand and, in so doing, add more stress and anxiety to our lives. Good luck.
My daughter is on s/l. At first it seemed fantastic. Staff were good and interacted with her. A year on there are many issues, medication being messed up, senior staff "not talking to her" due to her swearing at them. Staff being shared with others, getting picking up times messed up do she's left waiting for over an hour. When I complained they said it was unfortunate. They are being paif £2500per week to look after her but I do more than they, I shop, arrange her activities, medical stuff, education. The system is so corrupt but we have no better options.
I am so sorry and worried for my sons future to read these posts, he is banked with social services so he doesnt have a named social worker when he gets an assessment which is really only about money , The SW's he gets do not live in our county and have messed up his care plan and caused a lot of upset in the past . The thoughts of him going into care is the biggest worry . .. good SW,s who stick up for our kids are very hard to find now , I have noticed a big difference in the last 10 years, .. I havnt met anyone in daycare that has been properly trained and during lockdown It opened my eyes and realised they had no empathy with the service user or thier carers or actually understood my sons needs , he has been going there for 15 yrs .. I know getting good support for him is going to be a struggle in our area for when he leaves home . I have COP for his finance and I am going to try for health . I find they are a hassle to deal with aswell and very intrusive, my son only recieves his benefits, he has no savings or property and lives with me so for the small amount of money he gets they want to know about every penny he spends , I really hope you all get the support you and your children deserve . I will be interested to read the outcomes .
if there’s no savings, inheritance or owned property there’s no need for cop for finance.
My son has recently moved to a residential placement. We chose residential care over supported living as it’s more stable and we don’t have the hassle of tenancy agreements and bills etc. we spent a long time searching and so far all is going well. He has high needs so it’s very expensive but he needs the 2:1 support. We don’t have deputyship for health. We are phoned weekly, once a month there is an MDT meeting that we attend via zoom. Any problems are reported to us immediately and we get a call if there is anything medical like vaccines to get our permission. There are good places out there 🙂
Hi I'm glad your son & you are in a good position. can you share where you use? I understand if you can't on here but im desperate as my daughter lives with me & my 2 grandchildren & we are being constantly harassed by the SW & above.
Completely with you on your blog .....its like reading a mirror image of our situation, firstly no we do not feel that our sons S/W is on either his side individually nor our side as a family ...WHY... because no1 she is a snowflake gen who does not have the strength or determination to question the very system that she is employed by. Our local auth... is the stress in our stress the drain in our drain the depletion in our delpletion and i have told them that to their faces, and they JUST DON;T GET IT. they leave the decision making to us, then when we inform them of that decision they don't go along with it, so i say stop telling us what we cannot do and start telling us what YOU can do ...answer NOTHING. RANT OVER.
I cannot believe this is still happening, I too had years of very bad experiences and now both my sons live at home. I am their main carer but we have a personal budget (DP). I cannot pay myself by the way, as my LA would not accept guidance about exceptional circumstances.
Even with a DP, it is not easy employing the correct people and as the rate in my area is set at £9.90 per hour, people just cannot work for that.
I totally agree with you on this . The way they treat parents with vunerbral learning & physical disabilities is disgusting. The system is full of Narcissistics. you've only got to look at the way people with learning disability are being taking away from there familys sectioned under the mental health & put in Rampton prison, and they've covered it up for years.
There's a petition via mencap if anyone would like to sign it. I did & recieved a letter back from our MP Jon tickets saying that he was aware & would be addressing it in Parliament.
The social services & the CCG have made my life hell for the last 5 years & even with the complaints I've made through out MP, social care & NHS its got us no where there behaviour has got worse.
The SW also likes to remind me how I'm a unpaid carer which I'm not sure about you but it makes me feel unworthy. plus because I'm dyslexic they twist my words & tie me up in knots so to speak. Its bullying for want of better words & the older my daughters become the worse there getting.
This is the reason I need help & assistance with a application to the court for depityship.
What we need fundamentally is a corporate crowd group who can speak with one voice rather than individual people all with the same issues........PEOPLE POWER is the only way to make "them" sit up and listen.
hi, i know how you feel and i agree with you, with my family, carer were feeding the client we will call it, in the shower and they were support to be there for an hours and it was to be the client indepenant, by repeating every day the same time to talk to the client, to explain what they are doing and to support and encouged the client so she will get to know the rouctice and will help by putting their arms up, dowm etc, but the carers were quick and did the care fast while my daughter was screaming and there was marks on her body cause carers were using force while they were doing the care quick, taking the client out they went and done their shopping which the client were in their care, they never stayed for the whole hour and when i question it they said your not paying for it. social seervice were aware of it, there were no care in the morning as the client was taking out by family but the carers came in and fake their information in the book, i told social managers but they didnt care, i too put my foot down and said she will not go to day centre and care would be stoped unless we get to be involved with what hours we want and we all doing all care while with paperwork it would seem the carers are doing it, the hours given after the covid started were of no used to us by social service looked the other way. they lied and said the same thing to me, they safe guarded me cause i e mail them but didnt do nothing when the carers were shouting, pushing, forcing feeding the client in the shower which they were showering her, when i question them, they said, saves time, i nformed them its against the law,you are suppost to be doing indepedant living not abuse and they could not speak english ,
i asked for extra help so that we all could live together as being indenpenant . social servise safeguarded me and said i had no right to decised in the best interest and they e mailed me saying if the client in ill than we are allow to keep them off for two days and if they are ill longer take them to day centre and they will say that the client is ill if not than i will be safe guarded, the crown court already given them a warming and said to me if any time in my life if they started to become corrupt agin get in touch with him, which we have, social workers have seem the client being drag in the middle of the road by the same carer who was once safeguard cause they left the front door open and the client ran away when quesion the carer said she time was up. she also was caught shouting at the client, social service e mail them saying not to do it again and to me she said asian poeple tend to speak very loud and they have told the agenty to explain how to speak. they were safeguard for an hour and all evdience social serive had made to disappear so that the agenty didnt have a mark. the same carer was caught dragging the client on many occaction and even the neigours had come out to compaint to the carer what she was doing, she said its quick to do this as she could not be asked to get the wheelchair. but social service covered it up and done nothing about it, they hide this in the invegation and we complained which they asked the person who we complained about to invegataed thei own complainist. then when we challeged it they e mailed me to stop talking about the staff in socail service and if i tell anyone she will rebotly come after me , the clients carer didnt speak english, they copied and paste cause then they would be paid but the family were doing the carer 95 percent cause which parent would allow their children do abuse specially infront of them, i allows it cause i was in shock i begged social service to help but they said we were lucky to get a goos package but we were doing the care, then we took the matters in our own hands by doing all of the care with family support which the care agenty got paid over 1500 per month, social service were aware by chose to do nothing.
Eldest daughter (around 30) with LD and variable capacity moved out after she was admitted to hospital several years ago. We knew she had a urine infection but the hospital didn't check that. She stayed there over a week, we kept asking for a urine check, never happened. Mental health got involved and she was transferred to a mental health hospital. Again, we kept asking for a urine check. Two weeks later, some 6+ weeks since leaving home, a urine check was done and, no surprise, she had an infection. Treatment was given and she made the expected recovery but, she was now in the system and we could not have her back because 4 weeks in the mental health unit had taught her too many copied behaviours., something we also mentioned was a huge issue with her.
Anyway, moving forward the years. Her last care provider was 'framework' so directly funded by social care. After investigation of evidence I had discovered, we found significant financial abuse, physical abuse and corporate abuse. They got away with it by sacking probably the only OK manager they had and are still operating in the county.
My daughters day care providers had just started up as domiciliary carers and we fought for direct payments to engage them as he previous care had literally just abruptly ended. It was agreed and for around 6 months, though it was not perfect, it did work.
In late June we had another assessment done as daughter was up most the night. She was awarded waking nights on top of her care at all other times. The problems came thick and fast.
Care providers never hired the staff to do waking nights so they continued sleeping nights, told the carers it was fine to sleep of the client slept. I challenged them, I had to, I am the guy paying them £160k a year! They refused to attend any meetings. When I spoke to them on the phone they were patronising beyond belief. Then we had the capacity issue whereby someone from social care would assess she didn't have capacity so, me and my other daughter have LPA and had to take over but, the care provider then challenged the assessments to say she did have capacity! This delayed every decision, one after another until someone else could do another limited capacity assessment that they would challenge.
Essentially, we can no longer work with this provider because my daughter is at risk every night.
We'd think social care would want to claim back their £26k in overpayments but, this appears not to be the case because they don't like looking backwards apparently!
Now we have to wait for a social worker to be allocated the case until we are allowed to change provider despite that they know she is remaining at risk.
It's a way bigger fiasco than even I have mentioned here but, I don't have the energy to write an even bigger post. As things stand, CQC are aware and 'hopefully' investigating' social care said in December they would also seek a recovery from investigation and, despite all that, care providers are now claiming that my daughter retains to make the decision she wants to stick with them!
Yes absolutely, I am I. Full agreement with you, having experienced nearly 3years of what is no more that blatant treachery, to keep to an agreement within a legally binding contract..ie: a care plan…. , assisted by a social worker who.s abject failure to stand up for what is right “snowflakes along “ to keep them self free from responsibility or blame. It is only with a team of dedicated p,a,s working around our son that we have been able to get him almost but not quite …back to the position he was in before “it all went wrong “ when you know what came to our shores in 2020 and following on all the crap and failures in the social structures ever since.
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