Hi everyone xoxo
I hope everyone is okay in their journeys and wish everyone nothing but positive vibes.
Me, Ryan, my son; and another couple & their 2 kids are about to take a 7 day hiatus to OBX North Carolina. I am hoping Dorian won’t impact too much of the east coast and pray for where it does. It is much needed and while everything is on a neutral plane this is a good time for us to go. Because when we get back we will be on the next part of our journey of recovery yet again.
Taf Mek combo will be stopped Sept. 13th; before surgery. And will resume it one week after. So he won’t be off for too long and want to know why the decision is what it is. I’m sure there is a damn good reason, I just like to know things. I haven’t put much time into research lately.. I guess I’ve gotten comfortable with being “okay”. I don’t like being there sometimes.. cause I know things can come down real quick. I don’t like to get comfortable. Need to stay on my toes; while trying to balance at the same time.
After surgery; diet will become a large part of the equation again. Steroids won over the healthy diet we had going. Evil little things they are.......
We have been trying black seed oil thanks to a beautiful “birdie” I have in New York ❤️ I believe in letting modern medicine do it’s thing cause it’s made amazing strides, but also using what God has put on this earth naturally to do in conjunction with man made medicines.
I told my God that we will stop wasting the time we have by putting garbage (food) into his body and to take the blessed time he has given us and put it to trying every last thing to keep him healthy. God has been good to us.
I love you all and thank you all for telling your stories. I pray for each and every one of you. Keep fighting, and be your loved ones advocate as much as you can ❤️ there’s much to learn.
Love from MD xoxo
