Do anyone get non epileptic siezure's with CFS/Me

[Charts]

I've been getting non epileptic siezure's and currently the doctors are looking into CFS/Me as my diagnosis. I only get these seizure if I over work my body, by over work I literally mean walking round my house for 5 mins. My legs just can't tolerate me walking, they are just giving in and I'm dropping to the floor. Days before this started happening I was struggling to shower and get dressed and then started having non epileptic siezure's upon being active. If I sit or lay down it doesn't happen.

[Osteomyelio]

Do they say it’s an “orthostatic” issue? I have orthostatic hypotension and if

I sit or lay down, but if I’m standing my blood pressure drops and I get light headed and have seizure like symptoms

[Charts in reply to Osteomyelio]

My blood pressure don't seem to be dropping when standing, my blood pressure seems to be on the low side but not dropping upon standing. My heart rate rockets when I stand up and move around. I just got a reserve of energy that seems to be like 10 mins, if I use all that it like my body shuts down. Hopefully gets some answers soon

[Bobbassett]

Hi Charts,

I have ME /CF fibromyalgia and a bunch of other health issues.

I began having involuntary muscle spasms a few years ago.

I was referred to a neurologist who diagnosed ‘functioning’ myoclonus, in his opinion, caused by hypersensitivity of the brain.

It can happen if there’s a sudden or unexpected noise, more so first thing in the morning or later in the afternoon as I get more tired. Sitting, lying down or sometimes when I am standing in one place. It’s very rare that the spasms happen when I’m walking.

I was prescribed with dopamine and this has helped quite a bit.

Ask your GP for referral to a neurologist.

Wishing you the best of luck,

Take care

Jan xx

[ALKT]

just a suggestion you might like to check the science for m e website .it has a lot of info and a very active community.