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Myalgic Encephalomyelitis Community
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Introductions..

So hello! I never properly introduced myself to this community. I was diagnosed with CFS/ME at 19. I am almost 22. It’s been a struggle. I do have it better off than some. I attend university currently (somehow). But that is all I do. No social life period. No extra items. No housework or chores. Just going to class and doing school work. Doing much else makes me crash. Which is good I found a baseline I guess? But also kinda crappy. If I do anything extra at all on the weekends, I most likely crash (80% of the time).

While here, I have a question for everyone. Anyone have trouble with falling? I recently fell again and sprained my ankle. Wearing a boot. My ankle just randomly gives out on me. My ankles are weak and awful. I already have bad balance. I just wonder if this is a hint at something else or part of CFS/ME. All help and comments appreciated. Hope everyone is doing as well as they can at their own pace.

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Hello.

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I struggled just to get one foot in front of the other for the first 3 years. some people with m.e also have problems with balance you might be able to improve your balance with a simple exercise standing near a wall or something you can grab hold off stand on one leg whilst slightly raising the other foot for as long as you can comfortably do so and then change to the other leg. I found after doing this a few times a day my balance improved. you may get better or more informative info regarding m.e on phoenix rising one of a few good and busy sites for people with m.e/c.f.s. best wishes.

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For some reason hypermobility (super bendy joints) often goes hand in hand with ME/CFS, this might be why your ankles turn easily. There will be info about how to test yourself etc on the net.

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Yes I trip up a lot and have balance problems. Don’t know if it’s related to the CFS but I am now very clumsy.

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