This might end your uveitis problems

[Petiot_111]

For all of you out there who are suffering from chronic uveitis and associated glaucoma, I thought I would share:

I have had uveitis and glaucoma from 25 up to now (I am 45). Several times a year I had to go to eye causality and get treated (maxidex, timoptol) with sometimes iop up to 54. I was tested for virtually everything that might triggers this. For years, I kept track of what I ate, what I did, where I was, in an attempt to understand the triggering factors.

2 years ago I stopped putting the mobile phone on my ear when calling (I use the speaker instead), and since then, i did not have a single episode. 2 years … Thinking about it, the first episode coincides with the period I got my first mobile phone (that statement makes me feel old!.

All this might be pure coincidence, and there might be another reason for this chronic episodes to stop (age? apparently this condition sometime resorbs itself with age) but, as you probably know if you have this problem, anything is worth a shot. If this helps even 1 person, I am a happy man!

[springcross]

Very interesting Petiot and thanks for sharing - I'm sure it will help others to know that.

[tallyho]

Were you put on iop drops in between visits and it still went up to 54? Did you have any surgery on your eyes like an iridotomy? .was it both eyes or one eye affected? Thanks

[Petiot_111 in reply to tallyho]

No, I did not take treatments between the episodes, but the treatment was generally over 3 weeks after each episodes. I had between 1 and 3 episodes a year on the bad years. The episodes were very sudden, going to bed feeling that something was not quite right, but sort of fine, and waking up with an almost blind, pulsating eye.

Only the left eye was affected (which is the side I used my phone on mostly). The iop reached 54 once but strangely enough I was never in too much pain (the doctor couldn't not believe it). I was put on intravenous few times because the iop was way too high and doctors wanted it to drop fast. The iop in the right eye was mostly normal.

I never had any surgery and refused the heavy, month-long cortisone treatment I was offered, twice. This leads me to advise people to always seek a second (even a third) opinion before taking on surgery or heavy treatments: because I always ended up in eye casualty, I never had the same doctor or consultant; Some are very sensible and caring, some just treat patients as the one-before-next and dont think twice about the life-long consequences of the treatments they prescribe.

[tallyho in reply to Petiot_111]

Thanks my iop got up to the 40’s I was referred as a glaucoma suspect straight away then had a bilateral iridotomy then put in eye drops twice a day every day ever since. This saved me from gluacoma. I still take iop drops every day just incase I were to get another spike. Also after my monthly eye injections I get iopodine drops to help manage the spike after injections. My hospital has been very thorough and very good to keep me from glaucoma.

[tallyho in reply to tallyho]

I am also a steroid responder so all my treatment has been steroid free.