No treatment at all for Dry AMD ???😒 - Macular Society

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No treatment at all for Dry AMD ???😒

niki11 profile image
niki11
•8 Replies

I have had hard drusen in my eyes since 36 (now 46) and got diagnosed when they did the dye and scan of my retina as having AMD, but was told to eat leafy greens, take vitamins and basically there isn't anything they can do until or unless it turns wet. Is this true?

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niki11 profile image
niki11
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8 Replies
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springcross profile image
springcross

Hi niki11. Yes it is true about the dry amd. I have wet amd but my brother-in-law has dry in both eyes and has for a few years now and he was told to use special supplements for it and eat leafy green veg. I have given two links below about the amd so maybe you can find what you need to know in one or both of them.

macularsocety.org/macular-d...

rnib.org.uk/eye-health/eye-...

Rosalyn-helpline profile image
Rosalyn-helplinePartner

Dear niki11,

Please contact us to discuss this further.

Kind regards,

Rosalyn

Macular Society Advice and Information Service

0300 3030 111

help@macularsociety.org

I was diagnosed with dry MD nearly twenty years ago and was told that there would be soon be a treatment but there has been no treatments. I was just given an Amsler Grid, told to check for distortions which I was told would indicate that I had wet MD. When I did have distortions I then learnt you can have distortions with dry, after having scans for wet. It is very, very depressing that there are no treatments in the foreseeable future for dry md but there are for wet.

oldoakowl profile image
oldoakowl

Vitamins, lots of veggies and salads, and wearing sunglasses are protective. They slow the progression of dry MD but don't reverse anything. The "what are drusen?" post describes changes in drusen with vitamins and where to get them in the UK. Slowing things down is very worthwhile doing while we wait for an effective treatment.

kit19 profile image
kit19

I was told exactly the same. I have since lost quite alot of my central vision in my left eye. Fortunately the problem I have with my right eye is treatable with injections and because both eyes work together I manage most everyday activities including driving. Follow the advice given it can help

wooflehound profile image
wooflehound

I was told the same and given an Amsler chart, I was told the danger was my dry drusen might turn into the wet form and my eyesight would deteriorate rapidly. Last year I noticed the Amsler chart looked different and presumed this had happened. I went to my optician who referred me to the local Optegra Hospital under the NHS. Turned out I had a macular hole which was very swiftly operated on, followed by cataract surgery. The moral of my story is to remember to keep checking the Amsler chart, If i hadnt checked it regularly the damage from the macular hole would have been far worse.

Janbeach profile image
Janbeach

Get Cocoon sunglasses, the amber color really helps.

rosyG profile image
rosyG

yes it is- keep your good pressure under control; as important for eye health- as I have found to my cost!

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