help please: hello all my 3 year old just... - Macular Society

Macular Society

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help please

missellie78 profile image
6 Replies

hello all

my 3 year old just been diagnosed as server visually impairment but although I agree he doesn't have 20 20 vision but I really believe he can see something and a lot more that the ophthalmologist give him credit for.

my son was born at 26weeks and 3 days and this is the cause of the vison loss.

advice please thanks in advance

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missellie78 profile image
missellie78
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6 Replies
springcross profile image
springcross

I'm really sorry to hear about your little boy but this isn't something we would be able to advise you on. You could try the RNIB and ask their advice on 0303 123 9999 which is their helpline number. Alternatively, you could ring the Macular Society to ask them if they could point you in the right direction, their helpline number is 0300 3030 111. I'm sorry that I could not give you anything further than this but I do wish you all the best and hope that someone can help your son. x

missellie78 profile image
missellie78 in reply tospringcross

Thank you I really appreciate you time x

springcross profile image
springcross in reply tomissellie78

You're very welcome and I hope you find the help you need for your son. x

Springcross has given you good advice x

Keep your instincts and positivity, children are notoriously difficult to test on a range of things. Very best wishes and hugs to both of you XX

missellie78 profile image
missellie78 in reply to

Thank you

Becky_MacularSociety profile image
Becky_MacularSocietyPartner

Good Morning Missellie78,

I believe unless it is a macular condition he has, it will be better for you to speak to the RNIB as sprincross suggested. They deal with all sight loss conditions whereas we deal with a specific type of condition.

Also Guide Dogs do have a very good service for children so it might be worth contacting them also: guidedogs.org.uk/getting-su... and their number is 0800 781 1444

Best Wishes

Becky

Macular Society

Advice and Information

help@macularsociety.org

0300 3030 111

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