Nearly here next injection : My next... - Macular Society

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Nearly here next injection

WADDINGTON profile image
18 Replies

My next injection on the 17th Feb don't know why but I'm more nervous then my last one. 😂😂

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WADDINGTON profile image
WADDINGTON
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18 Replies
Bunny1756 profile image
Bunny1756

Greetings, Waddington,

How many injections have you had and what medication? Is it helping you? What were your experiences before and after?

Bunny1756

WADDINGTON profile image
WADDINGTON in reply to Bunny1756

This will be my second one on the 17 th Feb. My first one I was worried but it didn't hurt so now I'm not worried. Iv had eye drops after lazor treatment. My eye seems the same but it's probably to early to tell

Bunny1756 profile image
Bunny1756 in reply to WADDINGTON

Waddington,

Did you have any pain after the anesthetic wore off? I am worried about what to do if I have reaction to this whoke ordeal.

Thank you,

Bunny1756

WADDINGTON profile image
WADDINGTON in reply to Bunny1756

After I just had a aching eyeball but it went away after a while. The nurse will tell any problems ring up the hospital in normal hours or after hours any problems happen but iv been fine

Codeblack7 profile image
Codeblack7 in reply to WADDINGTON

Hello,nerves calm after awhile. They should change saying eye injections to SSS, sight saving shots! Just thought I would throw in some humor. I do understand your anxiety (been there), you sound like a pretty seasoned person with eye procedures so you can face anything that will save your site! Hope all goes well!

Hi, yes, I found the same x Takes a few before it becomes routine - like anything, practice makes it easier. Always used to get a bit wound up the week before even if I knew it would be fine - I think it's normal, just got to make yourself relax.

I still do have a moment of panic in the last couple of seconds, think I always will lol.

Just keep thinking back to the 1st one - you posted how easy that went. X

Bunny1756 profile image
Bunny1756 in reply to

Eyesright,

More wonderful advice. I am worried about what to do if I have a reaction or something major happens. What kind of improvements did you notice after the injections, and what was happening before them? Is the medication helping you read?

Many thanks,

Bunny1756

in reply to Bunny1756

Hi bunny,

I was getting blurry ( couldn't read) and bent straight lines then losing central vision ( a big grey blob) before inj. Every single inj brought my sight back ( for some just 3 inj work completely and they need no more but for me they each wore off after about 5 weeks and my treatment has been ongoing for 6 years. The specific eye condition makes a difference too - everyone has their own journey with this.).

Without doubt I would be unable to read in left eye if I wasn't having treatment. My right eye is not perfect vision so life would be difficult. I view treatment as a blessing although it is not easy. On balance worth it.

In fact my sight problems prompted me to write my first novel - never thought I'd do that. Now writing book 3 of my trilogy with the prequel planned!

Make something positive out of the fear and despair and transform how you feel x

Regarding worry about what might happen - I use a visualisation technique. Imagine each scenario and make a plan of what you would do. Eg if it hurts, I plan to take paracetamol and soothing drops. If I am sensitive or allergic to iodine I will ask them to use chlorhexidine. If my iop raises they will know because they check and will give me drops for it which I will take ( they work well). If I get some other event they will know, are trained to deal with it, I will allow them to do their job. Etc. Etc.

If you know beforehand how you plan to react then I've found that eases fear as most fear is based on the unknown. X

Bunny1756 profile image
Bunny1756 in reply to

Eyesright,

Thank you so much again, Right now, I am actually having trouble reading in both eyes, even though the retina problem is only on the right, I have been told this is normal as I get older. Perhaps reading glasses, by prescription, would remedy the whole problem. Then there is this reflection problem in bright light. I want to see another opthomologist who can examine me for this. I guess since I already set things up with the retina doctor on the 19th, I will see him first. I need to research a n opthomologist.

Wonderful you are writing books. What is the subject matter?

I am listening to all the election excitement tonight. Another night without sleep.

Bunny1756

in reply to Bunny1756

Hi bunny, re new specs. yes will probably help but wait until you see your Dr. I don't know what treatment regime he advises but here in UK eyelea usually given as a "loading dose " of 1 inj a month for 3 months then review. If you can afford it I would get new specs then. Be prepared though that if you need more inj your eye prescription may change again, might be better, you may need newer specs. Everyone is different. My clinic kept saying to wait, wait, but after a year I decided I needed to read better! I have had to update specs a few times but worth it to me. Remember, no one else sees through your eyes and only you can decide if the cost is worth it.

My books are science fantasy/ multi verse love story/

good & evil / power of nature /destruction by mankind.

Bunny1756 profile image
Bunny1756 in reply to

Eyesright,

I will wait a little while with new glasses for now.

Your book subjects sound very creative and wonderful.

Bunny1756

Janbeach profile image
Janbeach

I am more nervous every time it seems, afraid something will go wrong, I’ll move or whatever.

in reply to Janbeach

Sing a favourite song inside your head - will distract you from thinking about whats happening and it'll be over before you can twitch x

WADDINGTON profile image
WADDINGTON

No nothing will go wrong . First time I went was scared as well. Don't worry.

Yeso profile image
Yeso

Waddington... wishing you the best, I had my second injection last week, I know how you feel, with God’s help you will be fine x

Bunny1756 profile image
Bunny1756 in reply to Yeso

Greetings, Yeso,

I have made an appointment for a first injection on February 19, thanks to all the wonderful encouragement I have received here. Do I want to do this? No. I cannot stop thinking about this. It has become impossible for me to think about anything else. I am having a needle placed into my eye. For me, this is beyond belief. If something goes wrong, I am completely alone. I have no one to help me and no “safety net.” I have a very low threshold for pain. For me, dealing with this procedure is a true nightmare. Everything everyone has told me is wonderful and correct. Yet, I cannot trivialize this or get used to the whole idea, I just may allow the doctor, who has not been helpful or compassionate, to examine me again but not go through with the injection which is what I have done twice already. The doctor and the techs could not have cared less. It is not their problem. After that, I made two more appointments and wound up cancelling them both. I am trying again. Ultimately, I am realizing this procedure is just not for everyone. I do not think I can do it. Do I need the medication ? Yes, but not like this. I would love to know if the medication is helping you? Were you in pain following the injection? Eventually there will be DROP delivery for this medication, patient administered. Needle injections into eyes must be stopped We all have enough to deal with, without having to handle this nightmare of a procedure.

God Bless Everyone,

Bunny1756

in reply to Bunny1756

Hi Bunny,

I think we all agree drops will be so much better. The question you have to ask yourself is are you willing to wait without treatment until they are available? Are you willing to risk your eye not deteriorating further in that time? Are you willing to risk permanent damage which might occur and not be able to be remedied by future drops?

If the answer is yes to all the above ( and you say you will have no safety net if things go wrong with an injection but isn't the same true if you dont?) then make your decision not to have the injection and be at ease with that. Doesn't matter what I or anyone else does for our eyes, you have to do what's right for you.

I do think though, that you wouldnt be having this crisis of decision if you didn't want to be treated now rather than wait. Unfortunately injections are the best on offer right now but until you've actually had one you're not really in a position to judge what it's like - you'll be forever basing your intense fear on the unknown.

Of course it's scary, no one would do this if they didn't feel they had to. I usually get twitchy about a week beforehand knowing it's coming even though I've had loads now and know it will most likely be absolutely fine. It is never trivial, it simply becomes doable, because we do it.

You could ask for sedation and good painkillers beforehand to ease your concerns.

New research confirms thinking about colour also relieves pain and has other effects - eg pink and blue are calming, green promotes natural healing and adds harmony &balance. Cool colours alleviate muscle spasms. Silver deflects negativity. There's lots more. The science behind it is based on vibrations - colour is just a specific light vibration. It's fascinating!

Someone posted earlier their pet scratched their eye - that's way worse than a tiny needle being inserted gently under anaesthetic by a trained person using aseptic techniques.

May I ask, has your pet ever accidentally bitten or scratched you? If so, I bet it hurt a bit at the time but you got over it.

Even if she never has, you didn't not get her because she MIGHT do so, as the benefits of having her out weigh the risk and there have been years she hasn't hurt you at all even though the potential is still there. You pick her up every day knowing that a scratch may become infected and need treatment.

Eye injections are basically the same. The difference is that you've held your pet and know what that's really like and so any concern of being bitten etc has been relegated to a normal theoretical status rather than an everpresent overwhelming fear.

When you get to the injection room perhaps imagining she is with you will help - think of her soft fur, any cute noise she makes or snuggles she gives, rub your hand where she usually snuggles against you and visualise her there so you don't feel so alone.

I am a bit odd I think as I prefer to go alone to my injections. I find I am stronger alone mentally and emotionally than when anyone goes with me!

Sending you hugs and strength to make your decision, whatever that might be x

Bunny1756 profile image
Bunny1756 in reply to

Eyesright,

You are helping me SO VERY MUCH :) The bunny is absolutely darling and has never scratched or bitten me. She is so very gentle, darling, and not aggressive in any way. I have had her since 4 weeks and she is very used to being handled. She is also amazingly smart (:3 She comes to me the second she sees me and I have taught her to do many things.

I am trying to relax and not make this injection the center of my world right now. It is not happening. I will read your link.

The saga continues,

Bunny1756

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