Need more information from people with same problems.

[Codeblack7]

Hi I would like to know if anyone has been diagnosed with BRVO with macular edema. I have been treated with avastin,ozurdex,and now Eyelea for 6 years. My central vision is gone in the treated eye. Vision is just finger counting. My saving grace is my 20/20 good eye. I was starting to get the injections every 2 months and the last 2 visits 7 weeks and 6 weeks apart. I have several floaters I the treated eye and had a tear in the retina. I am thankful for what I do have and that I can still drive.

[kevinaki]

Well, good for you! For 6 years, you've managed to save your 20/20 eye. That's quite a feat because the odds were against you!

If you're doing something special e.g. eye vits, diet, no cigs, etc... keep it up!

macularsociety.org/sites/de...

macularsociety.org/diet-and...

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[Codeblack7 in reply to kevinaki]

Thanks so much kevinaki! I protect that eye at all times.

[Hidden]

Hi, yes I have the same and in year 5 of treatment. I had lucentis, eyelea, now on 6th ozurdex. Vision pretty good until oedema flares up but so far treatments have worked to reduce it albeit only for short time (4 weeks inj / 16 weeks ozurdex). I too drive and work but my ' good ' eye isn't 20/20, cant complain tho.

Had complications of treatment - raised iop from inj( on drops which work well) and cataracts from ozurdex ( bad eye done, waiting until good eye really needs it).

Didn't think I'd still be on this journey years later - nice to find someone else in for the long haul ( but also not, of course, wish you hadn't been through your own!).

Sorry to hear you've lost central vision, I feel so lucky. Best wishes going forward x

[Codeblack7 in reply to Hidden]

Thanks eyes right. I am very fortunate with my good eye. Like you said it does help to talk to people that are I it for the "long haul." Both eyes have had cataracts. The good eye had the film develop on the new lens. Laser treatment took about 10 minutes. The change in my vision in regard to color was unbelievable. I didn't realize that the color was missing. We should keep in touch. I wish the best for you!

[Tetrazzini]

I lost my right eye to ARMD in 2015 (now finger vision omly).

Lost my right eye last year - dreadful situation but life goes on with many blessings.

[Codeblack7 in reply to Tetrazzini]

Thanks Tetrazzini you have a great attitude!

[Rosalyn-helpline Partner]

Dear Codeblack7,

We do have support groups. This may be a good way to link up with individuals with the same diagnosis:

macularsociety.org/local-su...

Please contact us if you would like the contact details for the group leader.

The Macular Society Advice and Information Service is open 9am – 5pm Monday to Friday on 0300 3030 111. Alternately, you can contact us via:

[e-mail]

Kind regards,