Crvo with macular oedema

[sarahc333]

Hi I have crvo with macular oedema and have had 2 bouts of laser eye treatment and 3 injections of lucentis,,I am seeing my consultant next week but just wondered if anyone else has this, what is the outcome if any and how are they getting on now..

[thom3patty]

I don’t know what crvo is but I have macular odema I receive eylea injections for it

[sarahc333 in reply to thom3patty]

Ok thanks for the reply, crvo is central retinal vein occlusion, not good and with the macular oedema on top of it even worse. .

[thom3patty in reply to sarahc333]

Thanks for explaining 🙏🏻

[Mrdg]

I seem to have same problem. I had 5 Lucentis injections but after the 5th the problem became worse. Then I had 2 implants. I also had two sessions of laser treatment. I’m now having Eyelea injections every 8 weeks and there has been a great improvement. I still have a lot of distortion due to the damage to the retina. ATM I am very happy.

Good luck to you too.

Please let us know how you get on.

[sarahc333 in reply to Mrdg]

Hi Thankyou for the reply, what did you have implanted?? 🙈

[Mrdg in reply to sarahc333]

I don’t know the name of the implant just that it was a steroid. They did help but caused pressure to become very high.

I was told by two consultants that they were not available to our hospital any more.

The good news is that the Eyelea works better and the pressure has come down.

Mags

[sarahc333 in reply to Mrdg]

Thankyou that’s good to know, I hope your vision stays good xxx

[Rosalyn-helpline Partner]

Dear sarahc333,

I am copying a link to our information on CRVO and macular oedema in case this is useful:

macularsociety.org/sites/de...

macularsociety.org/sites/de...

It might be useful as a discussion point with your ophthalmologist.

Kind regards,

Macular Society Advice and Information Service

0300 3030 111 (9am – 5pm Monday to Friday)

[e-mail]

[sarahc333 in reply to Rosalyn-helpline]

Thankyou very much xx