update on vision decline!!: I attended the... - Macular Society

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update on vision decline!!

rosyG profile image
6 Replies

I attended the clinic today and Eyesright was correct last week when she said we notice some vision loss just before a new lot of oedema- my oedema was much more today than on the scan 10 days ago. I was supposed to be seen before today but no appointment arrived and when I rang yesterday they found they had misunderstood and thought today's (routine) appt was the new one!!

Any way, I had an injection and have been moved back two 8 weeks. I am relieved it seems not to be a new occlusion( one diagnosis last week) but have to be patient mow and see if my vision improves in the way it did when I started injections. Fingers crossed. Eyeright, I hope your cataract operation is on track- do let us know how you get on

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rosyG
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2468G profile image
2468G

Hi rosyG

Hope very much this latest injection improves your vision. They so often do. I find it worrying that oedema can increase so much in a short while. I hadnt realized. Our monthly scans are imperative.

Best wishes to you. 2468G

rosyG profile image
rosyG in reply to2468G

Thankyou

I think if you check your vision - Amsler grid is useful- you get warning of the oedema and can turn up at eye casualty or your clinic !! Hope you are doing well

Fingers crossed for you rosyg x the inj always brought me back so I'm pretty sure it will for you too. Xx

rosyG profile image
rosyG in reply to

thank you Eyesright!! Hope you are doing well

Hi rosyG I had a similar experience when I had to wait over 4 weeks from diagnosing a new leakage to getting my injection. During that time I noticed a sudden massive distortion in my vision and a dark grey patch in my central vision. Now, almost 3 weeks after the injection the distortion has gradually become less prominent but the dark patch is still there. My VA is 20/80 or 6/24 at present and hope it is not due to permanent damage. This has never happened to me before during the 2 years of treatment except at the beginning before the treatment had started. It goes to show how quickly the problem can, though may not, develop. I have now been given another injection appointment 6 weeks after the last one.

I hope your eyesight improves soon. Wishing you the very best x

rosyG profile image
rosyG

it's good to hear you've had some improvement and I hope it continues- it shows we have to be vigilant- the problem seems to be we notice things (Eyesright recalled a similar experience to mine) before it shows up on the scans. Hope you get on well

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