moving on to eylea next!

After ny visit to the American hospital in Paris, i wasn't too sure about their opinion as they didn't seem too concerned but yesterday i was with my surgeon for a long time as i wanted to know exactly what i had. It's something called detached pigmented retinal epithelium - it means i have detached layers of the retina and fluid is trapped in there( i think ) , they can't operate as it's in the centre of my eye - So he is going to try injections with eylea and i'm really hoping that this will help. My friend goes to a brilliant consultant in Manchester and she rung to see if she could speak to him on my behalf, he said that my surgeon is doing everything possible for me and doing the right things- so that's it, i've had a 3 rd opinion now and feel better knowing i can really trust my surgeon - my first eylea injections is a week on Monday so watch this space! xx

5 Replies

  • Glad you have an answer you feel you can trust x They thought I might have had a split retina initially but luckily the angiogram showed it wasn't.

    Hope the eylea works well for you, best wishes going forward x

  • Hi janalgarve thats great news and at least you know what's what! Where are you having injections ? Hope you don't have to pay😄 I'm due to have my 4th Eylea on 22 November, not sure if they are working but time will tell. So so scary isn't it! We all react differently after injection the first one being the worse. Good luck and sending you hugs from

    London, Keep us posted this site is brilliant xxxx Squinty 💜

  • By the way my injection is a day after you x keep in touch

  • Hi Janalgarve, so sorry to hear of your worries. We are all with you. It seems I have the same or similar condition as you. It was described as Pigment Epithelial Detachment (PED) with vitreo-macular traction, which means that my vitreous gel is abnormaly sticky, sticking to the retina and pulling on the macula. Something like that! All this is in conjunction with wet AMD. At the clinic I was shown the scan and it showed clearly how the retinal layers had separated and formed a large swelling with fluid collected between the layers and one of those massive drusen. Apparently, PED is very resistent to VEGF treatment. That was why my consultant was at first reluctant to give me the injection. When one month later my visual acuity had dropped from 20/40 to 20/63 he decided to start me on eylea after all. I have now had my second injection.

    Don't worry too much. I am sure you are in good hands and that your consultant will do what he thinks is best for your particular condition. Sending you my love. x

  • Hi there just wishing you all the best. Eylea is becoming more widely used now as the first drug to try for a variety of eye diseases as the results have proved the extra expense worth it. Some are able to go 8 weeks without an injection as it lasts longer than some other drugs. I had my 8 th Eylea last week I had an 8 week break to see what happened and for me it was disaterous I lost 11 letters on the chart and had to move to 1 meter and that's with my best eye and the fluid went up by 178 micrometers hoping to get the letters back before Christmas

    Take care