Nightmares: I thank everyone who has... - Macular Society

Macular Society

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Nightmares

Hands_1 profile image
3 Replies

I thank everyone who has answered my question on my Brothers nightmares. It is definately the Charles Bonnet Syndrome. Everything matches what he is going through. It is a terrible thing to see someone who is not there also to dream of them. Thanks once again.

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Hands_1
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3 Replies

Very sorry for your brother x best wishes to you both for the future x

Fluffymahoot profile image
Fluffymahoot

I have joined this group because I was recently diagnosed with CBS Charles Bennet Syndrome and I'm wondering if anyone here has experienced the hallucinations caused by diminished or Macular degeneration. I have no vision in my right eye and had macular edema from cataract surgery in my left (hopefully that is gone). I understand that a lot of people have CBS but are reluctant to talk about it for fear of having dementia or that relatives or caretakers will put them in a home and not believe them.

I'm sorry that your brother is experiencing CBS. It can be very frightening and scary. Please feel free to contact me if I can be of any help with understanding more about this weird condition.

Hands_1 profile image
Hands_1 in reply toFluffymahoot

Thanks,but in such a short time he passed over a month ago. so devastating loved him so much.

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