Just been looking in, now I feel brave enough to let you know what has been happening. I have been unwell for many, many years. First diagnosed with crohns disease early teens. Then operations for that etc. Then arthritis etc.
Then broke back and hip about ten years ago found out I had osteomalatia now have iv drugs for that. On from that I have had all the wired symptoms and have been told that I have the sle spectrum. Also in November at clinic I was told I have now Probable undifferentiated connective tissue disease with sle spectrum. I also so have all the dry eyes, raised cholesterol due to the sle, peripheral heart disease due to sle. I have now had so many different infections skin boils etc as you all say, sunlight difficulties. The cholesterol has caused small vein disese of the white matter of the brain. Lung problems Plus everything else you all say.
I cannot work as a nurse any more so have stopped work altogether.
Happy Christmas to you all and thanks for reading in advance.