Is it 'normal' to wake up in pain to find you can... - LUPUS UK

LUPUS UK

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Is it 'normal' to wake up in pain to find you can't move your fingers for ages due to them being curled up?

Smiler1 profile image
10 Replies

( i've had this for years, but only mainly after a 'good night out' when i've drunk alcohol. But the last 2 years have got worse...it happens even when i haven't had an alcoholic drink for quite a while!).

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Smiler1
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luupysue profile image
luupysue

I wake up several times a night with my hands totally numb and sever pain in the right elbow, so I am guessing its all part of the course of things, hope you get some help with it soon.

Smiler1 profile image
Smiler1 in reply toluupysue

Thank you for your comment.

I'm sorry to hear that you too suffer similar pain etc.

Hmm, i guess it is part & parcel of things...

Thank you :0), i hope you find something that works to help you with yours too x

Kerro profile image
Kerro

I used to get cramp in my hands alot because of the steriods I was on. Are u on any ?

Smiler1 profile image
Smiler1 in reply toKerro

Hi 'Kerro', thank you for your reply.

How come you don't get cramp in your hands anymore? - are you off the steroids now?

No, i'm not on any (yet...), as my Dr knows I don't believe in taking conventional tablets...so we're 'keeping steroid tablets as a last resort...).

I can't understand how, by taking Steroids etc etc, they would 'help', as they just fill your body up with yet MORE toxins...which, in turn, adds to stress on the immune system etc etc (plus the side effects can add to health problems...).

I'm desperate to find alternative (herbal etc) medicines & use of alkaline diet, to try to lesson my symptoms & pain etc. x

suzyq100 profile image
suzyq100

Hi, this is really normal for me, I wedge my hands under my husbands shoulders at night to stop them cramping! I am only on Pain killer when needed , Manuka honey, Q10 and I try to eat Gluten free as much as I can! :)

Smiler1 profile image
Smiler1

Hi Suzy, i empathise with you. Hmm, very original idea! :) re wedging your hands! :>. Thank you very much for the tips (re honey etc), i'll try them out :) x

kimmyw profile image
kimmyw

do your fingers ping or jerk when they finally move?

When I wake up my fingers are curled and it takes several attempts to get my thumb and little finger(at the moment) to move, and when they do they ping/jerk upright. It is very painful and I have just be diagnosed with "trigger finger" and apparently need steroid jabs to reduce the inflamation of the tendon. Havn't had that done yet so dont know if it will cure it or not.

Hope this helps

lupylupus profile image
lupylupus in reply tokimmyw

Hi Kimmyw

I have had trigger fingers for ages and have had the steroid jabs. The first time they gradually went back to the trigger fingers and the second time it seemed to work ok. I used to wake up with fingers like sausages! It was very painful to staighten them, but after the jabs they are 100% better.

It is common for lupus patients to get this. We are privilaged!

Margaret x

LorraineLT profile image
LorraineLT

Yes this is normal, i have this happen all the time during the night

EvieG profile image
EvieG

I wear sleep splints to prevent this by keeping my hands in a relaxed position which were supplied by the occupational therapy dept at my local hospital as my hands used to do this all the time. Mention your hand problem to your consultant at your next appointment and they hopefully will help you to get this problem dealt with quickly. x

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