I've recently had a large cerebral lupus flare causing a huge amount of seizures and fitting, and after the seizure is over and I've "come round," I have the uncontrollable urge to keep shivering, or shaking, or a movement which may resemble tapping one's foot, or something along those lines. Does anyone else have this side effect? I've recently started on Plaquenil and don't know whether this is causing it. I'm at a loss, because it's putting so much stress on my muscles, having them keep moving, almost as a stimulant. It relaxes me... almost like someone with autism may rock back and forth to calm themselves down?
Anyone else have the uncontrollable urge to shive... - LUPUS UK
Anyone else have the uncontrollable urge to shiver or shake muscles after fitting?
Written by
karlyt
To view profiles and participate in discussions please or .
Read more about...
3 Replies
•
Hello Karlyt
Sorry to hear this, I wish that I has something usefull to say, but dont.
Plaquenil has done much to improve my muscles and overall heath & wellbeing.
Have you considered T'ai chi or a form of gentle exercise to keep things moving and loose?
I had a seizure about 6 months ago! My body before the seizure moved all the time! My legs are always moving I have RLS they say along with my systemic lupus! I take Klonapin for that . Love, Krisdy
What kind of medical attention are you getting when having these fits? are you unconscious? Is anyone with you when you have them? It sounds like the movements you describe are merely an integral part of the seizure. Personally I would dial 999. It could be a stroke.
Not what you're looking for?
You may also like...
Anyone else with UCTD or Lupus have tooth loss?
I’ve been being tested for Lupus for over a year and still going. They have diagnosed UCTD but are...
Does anyone else with SLE have leaky heart valves?
said I had a leaky heart valve which had never caused me any problems and was very minor when they...
Toothpaste makes me cough/gag. Does anyone else have this? If so how have you managed it.
I do get acid reflux and it may all be related to that as it been something that has become more...
Does anyone else have Shrinking Lung Syndrome as a complication of their SLE Lupus
out there sugger from a rare complication of SLE Lupus called Shrinkng Lung Syndrome. I have been...
Does anyone else have this problem?
I have an autoimmune - all my symptoms point to lupus yet my bloods have all settled to normal...