I've recently had a large cerebral lupus flare causing a huge amount of seizures and fitting, and after the seizure is over and I've "come round," I have the uncontrollable urge to keep shivering, or shaking, or a movement which may resemble tapping one's foot, or something along those lines. Does anyone else have this side effect? I've recently started on Plaquenil and don't know whether this is causing it. I'm at a loss, because it's putting so much stress on my muscles, having them keep moving, almost as a stimulant. It relaxes me... almost like someone with autism may rock back and forth to calm themselves down?
Anyone else have the uncontrollable urge to shive... - LUPUS UK
Anyone else have the uncontrollable urge to shiver or shake muscles after fitting?
![karlyt profile image](https://images.hu-production.be/avatars/16596bfc2763e71aca0fcd7572f2954b_small@2x_100x100.jpg)
Written by
![karlyt profile image](https://images.hu-production.be/avatars/16596bfc2763e71aca0fcd7572f2954b_small@2x_100x100.jpg)
karlyt
To view profiles and participate in discussions please or .
Read more about...
3 Replies
•
Hello Karlyt
Sorry to hear this, I wish that I has something usefull to say, but dont.
Plaquenil has done much to improve my muscles and overall heath & wellbeing.
Have you considered T'ai chi or a form of gentle exercise to keep things moving and loose?
I had a seizure about 6 months ago! My body before the seizure moved all the time! My legs are always moving I have RLS they say along with my systemic lupus! I take Klonapin for that . Love, Krisdy
What kind of medical attention are you getting when having these fits? are you unconscious? Is anyone with you when you have them? It sounds like the movements you describe are merely an integral part of the seizure. Personally I would dial 999. It could be a stroke.
Not what you're looking for?
You may also like...
does anyone know where to find a flexible job suitable for people with SLE?
Hello everyone,
I hope you all are doing good during this days, I wanted to ask if any of you...
Feelings of disappointment
With having Lupus and a few other conditions, being on steroids and suffering from anxiety and...
Colonoscopy update and thanks
Well I survived! I had sedation and it didn't hurt at all. I agree the worst part was the prep -...
Sun protection. Mineral sun lotion on a budget
Staying protected from UV rays is high on many peoples list this week, with layering and staying...
Opthamology appointment re Hydroxychloroquine
Are any of you going to an Eye hospital for the yearly checks if taking hydroxychloroquine? I’m...